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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Wednesday, November 10, 2010

quick update

Looks like we will be in Cincinnati but not how it was planned. About 3 am this morning Alicia was taken by ambulance to our hospital here at home. Her fever was at 104.7 and she starting seizing. An air ambulance from cincy is on its way now to transport her. Her bands are at 56% which means she is trying to fight an infection. Her pic line was pushed all the way in to her right side of her heart. That's how infection started. She will have to spend her birthday in the hospital which is a week from tomorrow. I will update more from Cincinnati. Mee-ma

1 comments:

Anonymous said...

Oh I'm so sorry!!!!!!!!!!!!! That's just not right!
So many times these words just roll off the tongue without really effecting the heart. These are very powerful words! Praying!
Proverbs 3:5-6 Trust in the LORD with all thine heart; and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths.
Prayer Bears
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