ALICIA HAD A BETTER DAY TODAY. SHE STILL IS PRETTY WEAK, BUT SHE WAS ABLE TO STAY AWAKE A LITTLE WHILE TODAY. SHE DIDN'T EAT MUCH STILL BUT HE FEEDING TUBE IS STILL IN (THANK GOODNESS!!!)
I LEFT THE ROOM FOR A FEW MINUTES TO RUN AND GET HER CLOTHES FRO THE RONALD MCDONALD HOUSE AND THIS IS WHAT I WALKED IN TO. SHE MESSED WITH HE RBANDANNA BUT NOT THE MASHED POTATOE'S. I COULD DO NOTHING BUT LAUGH WHEN I SEEN HER.
WE DID GET SOME GOOD NEWS TODAY, ALICIA HAS AN ANC!!!!!!!!! YESTERDAY IT WAS .05 SO I DID NOT GET MY HOPES UP BUT TODAY IT WAS AT .32!!!!! PLEASE KEEP UP THE PRAYERS, THEY ARE BEING ANSWERED. HER WBC ALSO SHOWED TODAY. YESTERDAY IT WAS AT .2 AND TODAY IT WAS AT .4!!!!! HER PLATELETS WENT UP TO 212,000 FROM 13,000 WITH THE HELP OF THE TRANSFUSION YESTERDAY. HER HBG WAS DOWN TO 7.8 SO I ASSUME SHE WILL BE GETTING RED BLOOD TOMORROW.
I HOPE THE NEW SITE DID NOT THROW ANYONE OFF. I LIKE BEING ABLE TO POST PICTURES AND STILL LOVE THE COMMENTS EVERYONE LEAVES FOR ALICIA AND I AND ERIKA.
I WILL UPDATE AGAIN IN THE MORINING.
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
Sunday, June 29, 2008
DAY +10
Posted by Michelle at 6:12 PM
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8 comments:
YEAH! Fabulous news about the ANC!! I loved the photo of Alicia's handiwork with her bandana. She is such a sweetie. Love, Dianne and Family
Alicia,
Hip hip hooray on the ANC! Those new cells are growing. Love the new blog. Mee-ma is doing a fantastic job.
Love, hugs and many prayers,
the Fiaschetti FAmily
Mary Ann, David, Joey & Peter
Yay! Glad you figured it out. It was great to read the update and to see the photos. It was pretty funny seeing her with her messed up bandanna...haha! Way to go on the counts increasing!! Any news on the infection? Give her a hug for us.
YES!!! That Is great news about the wbc's and the ANC! Prayers are still coming!
Love Charisse
That is so wonderful Alica was feeling a little bit better today . Loved the new bandana look . Pretty snazzy .
Keeping Alica in our prayers .
Tracy and family
www.caringbridge.org/visit/margaretreed1
Found you!
Praying right now!
Psalms 32:6-7 For this shall every one that is godly pray unto thee in a time when thou mayest be found: surely in the floods of great waters they shall not come nigh unto him. Thou art my hiding place; thou shalt preserve me from trouble; thou shalt compass me about with songs of deliverance. Selah.
Whoooohoooo!!! Glad you are getting counts! Wonderful news!
Love the bandana arrangement!
Blessings and Bunches of Bear Hugs
Hi guys,
Love the new site! I need to figure out how to change the background on mine. I'm so glad that she is feeling a little better. It will come. The first part is always the hardest. Know that we are here praying for you all! Give her a hug from Amelia...
Blessings,
Kelly
http://www.caringbridge.org/la/marshall_n_amelia
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