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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Saturday, June 21, 2008

Day +2

EVERY THING WENT VERY WELL AGAIN YESTERDAY FOR ALICIA. I AM GETTING KIND OF NERVOUS THAT EVERYTHING IS GOING AS WELL AS THEY ARE. THE LORD MUST BE HEARING ALL THE PRAYERS BEING SAID FOR HER AND IS ANSWERING THEM.

ALICIA'S COUNTS YESTEERDAY WERE ALMOST GONE EXCEPT FOR HER HBG WHICH WAS AT 10.1 (WOW)HER WBC WAS AT .1 AND HER ANC WAS 0.0. HER PLATELETS WERE AT 20,000 BUT SHE DID GET A TRANSFUSION THE DAY BEFORE LAST AND I AM SURE SHE WILL NEED ONE TODAY AS WELL. I AM CURIOUS WHAT HER COUNTS ARE TODAY, THE RESULTS ARE USUSALLY HERE AROUND 8AM SO I WILL UPDATE ON THEM TOMORROW.

ALICIA'S BP IS STILL DOING LITTLE TRICKS BUT THEY HAVE BEEN ABLE TO KEEP IT UNDER CONTROL VERY WELL, AND SHE DID START COMPLAING THAT HER TUMMY HURT AROUNG 10:30 LAST NIGHT BUT SHE DID FALL ASLEEP AND SHE IS STILL SLEEPING SO HOPEFULLY THE NAUSIA HAS PAST. BUT THOSE WERE HER ONLY BUMPS YESTERDAY BESIDE HER BEING BAD FOR JO AND JACY.

JO AND JACY CAME UP YESTERDAY AND SAT WITH ALICA WHILE DENISE AND I WENT TO WALMART. JO SAID SHE WAS A LITTLE WILD CHILD. (LOL, THAT IS AN UNDERSTATEMENT) THE GIRLS SAID SOME PRINCESS'S CAME INTO THE ROOM AND ONE WAS DRESSED LIKE ARIEL AND ALICIA TOLD HER SHE COULD SEE HER BOOBIES. THEY SAID EVERYONE LAUGHED SO HARD AND IT JUST THREW OFF THEIR SHOW. (LEAVE IT TO ALICIA) I AM GLAD I WAS NOT HERE FOR THAT ONE... THANKS JO AND JACY FOR THE BREAK!!!!!!!

MY MOM SENT HER THE CUTEST DORA DRESS YESTERDAY. ALICIA KEEPS ASKING TO WEAR REAL CLOSE AND NOT PJ'S SO I AM GOING TO PUT IT ON HER AFTER SHE WAKES UP AND TAKES A WASH UP (IF SHE FEELS UP TO IT) I JUST HOPE SHE DOES NOT THINK SHE CAN LEAVE SINCE SHE HAS "CLOTHES ON" BECAUSE SHE HAS BEEN TELLING EVERYONE ALOT LATELY THAT SHE IS "ALL BETTER" AND WANTS TO GO BYE-BYE. I MIGHT JUST WAIT TO PUT THE DRESS ON HER. THANK YOU VERY MUCH MOM FOR THE DRESS, IT IS SOOOOOO VERY CUTE. ALICIA LOVED IT. YOU ARE THE BEST!!!!!!!

WELL ALICIA IS WAKING UP,EVERYONE PLEASE PRAY FOR ANOTHER GOOD DAY. I WILL UPDATE MORE TOMMOROW.

MEE-MA

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