June 3, 2008

I HOPE THIS BACK GROUND MAKES IT A LITTLE EASIER TO READ THE UPDATES ON ALICIA, TINA HELPED ME CHANGE IT SINCE I KNOW NOTHING ABOUT COMPUTERS, I HAD SEVERAL PEOPLE SAY IT WAS HARD TO READ IT THE WAY IT WAS SO I HOPE THIS HELPS.

I AM SOOOO VERY TIRED. I KEPP TELLING MYSELF TO PULL IT TOGETHER THAT WE HAVE A LONG ROAD AHEAD OF US, BUT ALL THESE TESTS ARE STARTING TO WEAR ME DOWN, BUT I KNOW OR AT LEAST THOUGHT THEY ARE ALMOST OVER.

MONDAY WAS A BUSY DAY. ALICIA HAD A CT SCAN DONE AND SHE HAD TO BE SEDATED. SHE IS SUCH A LITTLE BUSY BODY THAT IT WAS HARD TO GET HER TO GO TO SLEEP. THEY GAVE HER FOUR DOSES BEFORE SHE FINALLY FELL ASLEEP SO TO THE WAITING ROOM I WENT. ( I SURE AM GETTING VERY SICK OF WAITILNG ROOMS!!!) WELL I GUESS DURING THE SHORT 15 MINUTE SCAN SHE WOKE UP SO THEY GAVE HER EVEN MORE MEDICINE SO NEEDLESS TO SAY SHE DID NOT COME OUT OF SEDATION FOR A VERY LONG TIME. AFTER BEING IN RECOVERY FOR THREE HOURS THEY DECIDED TO GO AHEAD AND LET ME TAKE HER HOME SO ME AND JO LEFT CARRYING ALICIA STILL IN A DEAD SLEEP????? ( I THOUGHT IT WAS VERY STRANGE THAT THEY WOULD LET US LEAVE LIKE THAT BUT I GUESS AFTER ALICIA TRIED TO KICK ONE OF THE NURSES SHE PROBABALY DID NOT WANT TO TAKE ANOTHER CHANCE OF GETTING KICKED AGAIN LOL!!!)

WE GOT BACK TO TINA'S HOUSE AROUNG FIVE AND THEN CAME A CALL FROM THE RONALD MCDONALD HOUSE SAYING THEY HAD A ROOM FOR US FINALLY, ALICIA WAS BARELY AWAKE AND ACTING VERY, VERY, VERY DRUNK SO WE FED HER AND HOPED THE FOOD WOULD SOAK UP ALL THE MEDICATION SHE STILL HAD IN HER BUT NO LUCK.
SO OFF TO THE RONALD MCDONALD HOUSE WE WENT, ALICIA WAS SOOO FUNNY ALL THE WAY THERE. SHE MADE NO SINCE AT ALL!!!! I WAS SO GLAD WHEN THE TOUR WAS OVER AND I COULD FINALLY LAY HER DOWN BUT OF COURSE SHE HAD JUST WOKE UP FROM BEING TO SLEEP FOREVER SO SHE WANTED TO PLAY WAY PAST MIDNIGHT. AND I WONDER WHY I AM SO TIRED!!!

THE ALARM WENT OFF AT 6AM, AND WE STARTED ANOTHER DAY OF MORE TESTS. I THOUGHT TODAY WAS THE LAST DAY BESIDES THE CONFERENCE CALL TOMORROW WITH DR DAVIES,MICHELLE CROCKET AND ERIKA. WE HAD TO HAVE BLOOD DRAWS AT 8AM AND HER GFR TESTS ON HER KIDNEYS WERE TO START AT 8:30. SHE HAD TO HAVE DYE INJECTED AND BLOOD TAKEN EVERY 30 MINUTES AFTER WAITING FOR TWO HOURS AFTER THE DYE WAS INJECTED. EVERYTHING WENT PRETTY WELL WITH THE TESTS AND WE WENT BACK TO THE RMH TO NAP. THEN WE WENT TO TINA'S TO STAY THE NIGHT THERE. I REALLY NEEDED A GOOD NIGHTS REST AND LAST NIGHT WITH BEING IN A STRANGE PLACE AND THE LONG DAY WITH ALICIA AND NO SLEEP AT ALL I AM SO THANKFUL TO BE HERE AT TINA;S WHERE I KNOW I WILL BE ABLE TO SLEEP GOOD.

I GOT A CALL FROM MICHELLE ( SHE IS THE BMT NURSE COORDINATOR ) ABOUT THE TIME I GOT TO TINA'S AND SHE SAID SHE HAD TO ADD MORE TESTS, (OF COURSE ) THE CT SCAN SHOWED THAT HER STOMACH WAS ENLARGED SO WE HAVE TO GO FOR MORE X-RAYS TOMORROW AND IT ALSO SHOWED SEVERAL ABNORMALITIES IN HER NECK AND SHOULDERS SO THEY ALSO WANT TO DO AN MRI WHICH I BELIEVE IS GOING TO BE DONE SATURDAY. BOY DO I NEED STRENGHT RIGHT NOW.

I WILL LET EVERYONE KNOW HOW THE CONSULT GOES TOMORROW BUT I AM OFF TO BED NOW IF I CAN MAKE IT THERE BEFORE I FALL ASLEEP WALKING.

VERY TIRED MEE-MA