Day +8

FOR EVERYONE WHO DOES NOT KNOW, THE NEW PHOTO ON THE HOME PAGE IS OF ALICIA AND HER MOMMY, ERIKA. I HAVE THAT SAME PHOTO IN ALICIA'S ROOM. SHE LOOKS AT IT EVERY DAY. IT HELPS ALICIA FROM BEING AWAY FROM HER MOMMY TO BE ABLE TO SEE HER PICTURE.

YESTERDAY WAS ANOTHER DAY THAT WILL BE IN MY MIND FOR A WHILE, AS I HAD SAID IN YESTERDAYS POST ALICIA'S NG TUBE CAME OUT WHEN I WAS GONE WHEN SHE WAS VOMITTING SO A NEW ONE HAD TO BE PUT BACK IN. AND ONCE AGAIN IT WAS HORRIBLE. THEY WERE GOING BACK AND FORTH ABOUT IF THEY SHOULD PUT IN A NG TUBE OR A NJ TUBE. THE DIFFERNCE I UNDERSTOOD WAS THAT THE NJ TUBE WOULD GO PAST HER STOMACH AND IN TO HER INTESTANTS AND WOULD BE HARDER TO COME OUT SO I WAS ALL FOR IT. BUT STACY, ALICIA'S HEAD NURSE AND THE BMT DOCTOOR IN CHARGE SAID THAT THE NG TUBE WOULD HAVE TO BE PUT BACK IN BECAUSE THE NJ TUBE WOULD HAVE TO BE PUT IN IN RADIOLOGY SO PLACEMENT WOULD BE CORRECT AND WITH ALICIA'S ANC AT 0 THEY DID NOT WANT HER TO CHANCE BEING TRANSPORTED AND THE NG TUBE IS PUT IN RIGHT IN HER ROOM. I LET THEM KNOW THOUGH THAT I WAS VERY CONCERNED AND WOULD NOT BE LETTING THEM PUT A TUBE DOWN ALICIA LIKE THIS EVERYDAY AND IF IT IS TRUE THAT THIS STAGE OF TRANSPLANT IS ONLY THE BEGGINING AND SHE IS VOMITING ALOT NOW THAN THAT WOULD MEAN TO ME THAT THIS COULD HAPPEN ALOT AND I WOULD RATHER THE NJ WITH LESS CHANCE'S OF COMING OUT. SO THEO (ALICIA'S FRIEND PUPPET) CAME FOR ANOTHER VISIT AND THIS TIME HE EVEN GOT TO STAY FOR THE EVENING AND PLAY (WHICH IS NOT WHAT ENDED UP HAPPENING)

AFTER THE NG TUBE WAS PUT BACK IN, ALICIA COMPLAINED THAT SHE WAS ITCHY ALL OVER AND I COULD SEE WHY BECAUSE SHE HAD HAIR ALL OVER HER BACK AND IN HER BED AND SHE WANTED ME TO BRUSH HER HAIR, ONLY THIS TIME WHEN I BRUSHED IT ALL OF HER HAIR CAME OUT SO NEEDLESS TO SAY MY BABY HAS NO HAIR. SHE IS SOOOOOOOO PRETTY WITHOUT HER HAIR, I SENT ERIKA A PICTURE AND SHE HAD A VERY HARD TIME WITH IT. I MADE HER WAIT UNTIL SHE WAS ALMOST OFF WORK TO LOOK BECAUSE I NEW HOW IT WOULD EFFECT HER (AND I WAS RIGHT) SHE STARTED DOING MUCH BETTER AFTER SHE GOT HOME AND ANSHON SR HELD HER. I WISH SO BAD ERIKA WAS HERE, I KNOW THIS HAS TO BE HARD ON MY DAUGHTER. (IT WILL BE OK ERIKA. I PROMISE YOU TO TAKE VERY GOOD CARE OF ALICIA WITH EVERY INCH OF ENERGY I HAVE.)

DENISE ALSO HAD A HARD TIME WITH SEEING ALICIA LIKE THIS. AND SO DID HER DAUGHTER CASSIE WHICH IS ONE OF ALICIA'S FAVORITE COUSINS. DENISE BROUGHT ALICIA ALOT OF CUTE LITTLE HATS AND ONE WHICH A WHITE DORA ONE LIKE GILLIGAN WHERE'S IS ALICIA'S FAVORITE. I HAD TO WAIT TIL SHE WAS ASLEEP TO TAKE IT OFF. (THANKS DENISE)

ALICIA LOOKED IN THE MIRROR ALSO AFTER HER HAIR WAS GONE AND I THOUGHT IT WAS GOING TO SCARE HER OR BOTHER HER BUT ALL SHE SAID WAS "NOW I AM A BOY" I LAUGHED SO HARD INSIDE, BUT I TOLD HER "NO BABY YOU ARE STILL A PRETTY PRINCESS GIRL."

THE HAIR FAIRY CAME LAST NIGHT. I READ ALICIA THE STORY OF THE HAIR FAIRY BEFORE SHE WENT TO SLEEP, AND ALICIA PUT SOME OF HER HAIR UNDER HER PILLOW, SHE IS THE TOOTH FAIRY'S SISTER THAT COMES TO CHILDRENS HOSPITALS IN THE MIDDLE OF THE NIGHT IN HOPES SHE CAN FIND SOME HAIR FROM CHILDREN THAT LOST THEIRS AND IN RETURN SHE LEAVES THEM A SPECIAL GIFT BESIDE THEIR BED. SHE THEN TAKES THE HAIR AND GIVES IT TO TH BUNNIES SO THEY CAN MAKE BEDS FOR THEIR BABIES.

ALICIA WOKE UP THIS MORNING AND THERE WAS A DORA ADVENTURE SET BY HER BED. SHE LOOKED AT IT BUT HEN LAYED RIGHT BACK DOWN. SHE HAS BEEN FIGHTING A FEVER ALL NIGHT EVEN AFTER THREE DOSES OF TYLENOL IT IS STILL ABOVE 100. SHE ALMOST VOMITTED THIS MORNING BUT LUCKLY DIDN'T. SO THAT IS WHERE WE ARE AT NOW. I WILL UPDATE IN THE MORNING, PLEASE PRAY FOR US TODAY, I HAVE A FEELING THIS IS GOING TO BE A HARD DAY FOR ALICIA.

MEE-MA