CLICK HERE FOR THOUSANDS OF FREE BLOGGER TEMPLATES »

ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Tuesday, December 29, 2009

HOME AGAIN

LEAVING THE HOSPITAL



READY TO BREAK OUT


HOW MANY WIRES DOES AN EKG TAKE
WE FINALLY MADE IT HOME LATE YESTERDAY AFTERNOON. SHE IS STILL TAKING ANTIBIOTICS WHICH I CONVINCED THE NURSES I DID NOT NEED TAINING. LOL I TOLD THEM IF I HAD ANY QUESTIONS I WOULD JUST ASK ALICIA. HER GVH IS STILL GETTING WORSE. WE LEAVE FOR CINCINNATI A WEEK FROM TODAY. THANK YOU EVERYONE FOR SO MANY PRAYERS AND ALL OF THE SUPPORT.
MICHELLE


14 comments:

Dianne said...

Thinking of you, and sending out lots of prayers!!! With love, Dianne

Lynn said...

So glad you're sprung!!!!!!!!!!
Here praying!
Psalm 71:1-3 In thee, O LORD, do I put my trust: let me never be put to confusion. Deliver me in thy righteousness, and cause me to escape: incline thine ear unto me, and save me. Be thou my strong habitation, whereunto I may continually resort: thou hast given commandment to save me; for thou art my rock and my fortress.
Prayer Bears
My email address

Lynn said...

Continuing to pray!
Psalm 71:5-8 For thou art my hope, O Lord GOD: thou art my trust from my youth. By thee have I been holden up from the womb: thou art he that took me out of my mother's bowels: my praise shall be continually of thee. I am as a wonder unto many; but thou art my strong refuge. Let my mouth be filled with thy praise and with thy honour all the day.
Prayer Bears
My email address

Dianne said...

I am so glad you are home. Wishing you ALL the best in 2010! Love, Dianne

Lynn said...

Praying right now!
Psalm 71:14-17 But I will hope continually, and will yet praise thee more and more. My mouth shall shew forth thy righteousness and thy salvation all the day; for I know not the numbers thereof. I will go in the strength of the Lord GOD: I will make mention of thy righteousness, even of thine only. O God, thou hast taught me from my youth: and hitherto have I declared thy wondrous works.
Prayer Bears
My email address

Lynn said...

These verses give such great comfort! Praying!
Romans 8:26-27 Likewise the Spirit also helpeth our infirmities: for we know not what we should pray for as we ought: but the Spirit itself maketh intercession for us with groanings which cannot be uttered. And he that searcheth the hearts knoweth what is the mind of the Spirit, because he maketh intercession for the saints according to the will of God.
Prayer Bears
My email address

Lynn said...

Lifting up prayers!
Psalm 3:3-5 But thou, O LORD, art a shield for me; my glory, and the lifter up of mine head. I cried unto the LORD with my voice, and he heard me out of his holy hill. Selah. I laid me down and slept; I awaked; for the LORD sustained me.
Prayer Bears
My email address

Lynn said...

Praying in Seattle!
Romans 5:4-6 For whatsoever things were written aforetime were written for our learning, that we through patience and comfort of the scriptures might have hope. Now the God of patience and consolation grant you to be likeminded one toward another according to Christ Jesus: That ye may with one mind and one mouth glorify God, even the Father of our Lord Jesus Christ.
Prayer Bears
My email address

Lynn said...

Know that I'm here praying!
John 11:25-26: Jesus said unto her, I am the resurrection, and the life: he that believeth in me, though he were dead, yet shall he live: And whosoever liveth and believeth in me shall never die. Believest thou this?
Prayer Bears
My email address

Lynn said...

Praying right now!
Zephaniah 3:17 The LORD thy God in the midst of thee is mighty; he will save, he will rejoice over thee with joy; he will rest in his love, he will joy over thee with singing.
Prayer Bears
My email address

Lynn said...

The Lord understands everything you go through! Praying!
Isaiah 53:1-3: Who hath believed our report? and to whom is the arm of the LORD revealed? For he shall grow up before him as a tender plant, and as a root out of a dry ground: he hath no form nor comeliness; and when we shall see him, there is no beauty that we should desire him. He is despised and rejected of men; a man of sorrows, and acquainted with grief: and we hid as it were our faces from him; he was despised, and we esteemed him not.
Prayer Bears
My email address

Lynn said...

Continuing to lift up prayers!
Matthew 11:28-30: Come unto me, all ye that labour and are heavy laden, and I will give you rest. Take my yoke upon you, and learn of me; for I am meek and lowly in heart: and ye shall find rest unto your souls. For my yoke is easy, and my burden is light.
Prayer Bears
My email address

Lynn said...

What a blessing and comfort to have eyewitness testimony of Christ's life. Praying!
I John 1:1-4: That which was from the beginning, which we have heard, which we have seen with our eyes, which we have looked upon, and our hands have handled, of the Word of life; (For the life was manifested, and we have seen it, and bear witness, and shew unto you that eternal life, which was with the Father, and was manifested unto us;) That which we have seen and heard declare we unto you, that ye also may have fellowship with us: and truly our fellowship is with the Father, and with his Son Jesus Christ. And these things write we unto you, that your joy may be full
Prayer Bears
My email address

Lynn said...

Hope all goes well on your trip!
Know that your family is always in my thoughts and prayers!
Isaiah 53:4-6 ¶Surely he hath borne our griefs, and carried our sorrows: yet we did esteem him stricken, smitten of God, and afflicted. But he was wounded for our transgressions, he was bruised for our iniquities: the chastisement of our peace was upon him; and with his stripes we are healed. All we like sheep have gone astray; we have turned every one to his own way; and the LORD hath laid on him the iniquity of us all.
Prayer Bears
My email address