Once again I am sorry about the time in between my updates. I hope everyone is doing well and many prayers to the ones who are not.
We got to attend Camp Sunshine this year. Alicia and I both enjoyed oursefs soooo much. It was a much needed time away besides being in the hospital. We seen many old friends and met many new ones. I was very very nervous and held my breath many times. The worse was having Alicia in the airport in Chicago. I kept her very close to me, and she was transported by wheel chair from gate to gate. We seen an old friend from camp in the Washington airport and he sat behind us during the flight from Washington to Portland. His name is Zac and he is 24 with FA. Alicia just loved him. Alicia also connected very well with a girl named Saundra, she met her three years ago at camp and remembered her right away. And of course her favorite person of all times was there, Keith, no one ever compares to him. I was very excited to meet Russ Holden from Caddy for a Cure, he was there with his wife.
All went well the week we were there but of course when it comes to Alicia nothing goes so smooth. Two days after we were home she spiked a fever and had a HORRIBLE cough. We took her to the emergency room and they ran tests and it came back that Alicia had contacted the Paraenfluenza three. That set us four days in the hospital but all is well now.
We will be back in Cincinnati on the 22nd for a week. cross your fingers its only for a week.
Thank you for all of the support and prayers.
Michelle
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
Sunday, July 11, 2010
alot has happened
Posted by Michelle at 2:30 PM
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16 comments:
Thanks for update Michelle. Thinking of you!!! :) Dianne
Thanks for the update! Glad you had a good time but so sorry you had to "pay" for it afterwards.
Lifting up prayers right now!
Psalm 31:1-3 In thee, O LORD, do I put my trust; let me never be ashamed: deliver me in thy righteousness. Bow down thine ear to me; deliver me speedily: be thou my strong rock, for an house of defence to save me. For thou art my rock and my fortress; therefore for thy name's sake lead me, and guide me.
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Michelle,
Was great to see you both at camp..I am glad to hear Alicia is feeling better. When you said you will be in Cincy on the 22nd, Did you mean of July? Sarah and I will be there too. We leave on the 20th and her Biopsy is the Friday the 23rd of July. Talked with Tina and Keith the other day, we will see them while were there. I am still waiting for you to confirm me as a friend on FB. Love you Give Alicia a ((HUG)) from us.
Love
Lori and Sarah
Praying!
Psalm 31:9-10, 14-15a Have mercy upon me, O LORD, for I am in trouble: mine eye is consumed with grief, yea, my soul and my belly. For my life is spent with grief, and my years with sighing: my strength faileth because of mine iniquity, and my bones are consumed...But I trusted in thee, O LORD: I said, Thou art my God. My times are in thy hand:
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Praying!
Psalms 31:24 Be of good courage, and he shall strengthen your heart, all ye that hope in the LORD.
Prayer Bears
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Know that you're always in my thoughts and prayers!
Psalms 142:1-3a I cried unto the LORD with my voice; with my voice unto the LORD did I make my supplication. I poured out my complaint before him; I shewed before him my trouble. When my spirit was overwhelmed within me, then thou knewest my path.
Prayer Bears
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Know that I'm still here praying!
Jeremiah 29:11-13 For I know the thoughts that I think toward you, saith the LORD, thoughts of peace, and not of evil, to give you an expected end. Then shall ye call upon me, and ye shall go and pray unto me, and I will hearken unto you. And ye shall seek me, and find me, when ye shall search for me with all your heart.
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Still here praying!!!!!!!!
Revelation 21:1-4 And I saw a new heaven and a new earth: for the first heaven and the first earth were passed away; and there was no more sea. And I John saw the holy city, new Jerusalem, coming down from God out of heaven, prepared as a bride adorned for her husband. And I heard a great voice out of heaven saying, Behold, the tabernacle of God is with men, and he will dwell with them, and they shall be his people, and God himself shall be with them, and be their God. And God shall wipe away all tears from their eyes; and there shall be no more death, neither sorrow, nor crying, neither shall there be any more pain: for the former things are passed away.
Prayer Bears
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Know that I'm always here praying!
Romans 15:4 For whatsoever things were written aforetime were written for our learning, that we through patience and comfort of the scriptures might have hope.
Prayer Bears
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Know that you're in my thoughts and prayers!
Psalms 91:1-2 He that dwelleth in the secret place of the most High shall abide under the shadow of the Almighty. I will say of the LORD, He is my refuge and my fortress: my God; in him will I trust.
Prayer Bears
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No matter what happens in life, the Lord has us wrapped up in His loving care. Praying!
Psalms 91:4 He shall cover thee with his feathers, and under his wings shalt thou trust: his truth shall be thy shield and buckler.
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Continuing to pray!
Psalms 91:14-15 Because he hath set his love upon me, therefore will I deliver him: I will set him on high, because he hath known my name. He shall call upon me, and I will answer him: I will be with him in trouble; I will deliver him, and honour him.
Prayer Bears
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Know that you're always in my thoughts and prayers!
Psalm 32:6-8 For this shall every one that is godly pray unto thee in a time when thou mayest be found : surely in the floods of great waters they shall not come nigh unto him. Thou art my hiding place; thou shalt preserve me from trouble; thou shalt compass me about with songs of deliverance. Selah. I will instruct thee and teach thee in the way which thou shalt go : I will guide thee with mine eye.
Prayer Bears
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Lifting up prayers!
Romans 5:1-2 Therefore being justified by faith, we have peace with God through our Lord Jesus Christ: By whom also we have access by faith into this grace wherein we stand, and rejoice in hope of the glory of God.
Prayer Bears
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Lifting up prayers in Seattle!
1 Peter 1:3-5 Blessed be the God and Father of our Lord Jesus Christ, which according to his abundant mercy hath begotten us again unto a lively hope by the resurrection of Jesus Christ from the dead, To an inheritance incorruptible, and undefiled, and that fadeth not away, reserved in heaven for you, Who are kept by the power of God through faith unto salvation ready to be revealed in the last time.
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Praying right now!
1 Peter 1:18-19 Forasmuch as ye know that ye were not redeemed with corruptible things, as silver and gold, from your vain conversation received by tradition from your fathers; But with the precious blood of Christ, as of a lamb without blemish and without spot
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