EVERYTHING SEEMS TO BE GOING WELL. ALICIA ACTUALLY BEHAVED HERSELF AND HAS NOT PULLED ANY SURPRISES. THEY PULLED OUT HER PICC AND NO SHE HAS A REGULAR IV TO HELP CLEAR HER SYSTEM. ALICIA IS TELLING EVERYONE NOW THAT THEY PULLED HER LINE BECAUSE SHE HAS SPIDERS INSIDE OF HER. THE PLAN WAS TO REPLACE THE PICC AFTER 72 HOURS BUT DOC DAVIES SAID SHE IS GOING TO AIT LONGER IF POSSIBLE. SHE SAID AS LONG AS SHE IS TOLERATING THE IV SHE WILL LEAVE IT IN TO BE POSSITIVE THAT THEY GET ALL OF THE SPIDERS OUT OF HER.
SHE IS DOWN IN THERAPY AT THE MOMENT. SHE WAS SOOOO CUTE. SHE IS EARING A PAGEANT DRESS THAT NE NE GOT HER AND IT FLAIRS OUT AND SHE LOVES TO DRESS WITH IT ON. ( GET READY KRISTIN SHE IS GOING TO WARE YOU OUT AT CAMP. )
ALICIA IS BACK I WILL UPDATE LATER.
MEE MA AND ALICIA
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
Tuesday, May 11, 2010
UNEVENTFUL NIGHT
Posted by Michelle at 9:36 AM
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27 comments:
Thanks for the update. Yes, get all the "spiders" out. If you get a chance, please post a photo of Alicia in that dress. Would love to see her in it. THinking of you...Love, Dianne
Hope the IV holds for a while!
Praying right now!
Isaiah 30:18-19 And therefore will the LORD wait, that he may be gracious unto you, and therefore will he be exalted, that he may have mercy upon you: for the LORD is a God of judgment: blessed are all they that wait for him. For the people shall dwell in Zion at Jerusalem: thou shalt weep no more: he will be very gracious unto thee at the voice of thy cry; when he shall hear it, he will answer thee.
Prayer Bears
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Beautiful new pic!
Praying!
Psalm 17:5-8 Hold up my goings in thy paths, that my footsteps slip not. I have called upon thee, for thou wilt hear me, O God: incline thine ear unto me, and hear my speech. Shew thy marvellous lovingkindness, O thou that savest by thy right hand them which put their trust in thee from those that rise up against them. Keep me as the apple of the eye, hide me under the shadow of thy wings.
Prayer Bears
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Happy to hear the good news.
Hope Alicia continues to "behave" and that you both will be on your way home soon.
Love to both of you,
Mary Ann
Continuing to pray!
Psalm 17:15 As for me, I will behold thy face in righteousness: I shall be satisfied, when I awake, with thy likeness.
Prayer Bears
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This passage is so very special. We have such assurance of our salvation! Eyewitness testimony! Praying!
I John 1:1-4 That which was from the beginning, which we have heard, which we have seen with our eyes, which we have looked upon, and our hands have handled, of the Word of life; (For the life was manifested, and we have seen it, and bear witness, and shew unto you that eternal life, which was with the Father, and was manifested unto us;) That which we have seen and heard declare we unto you, that ye also may have fellowship with us: and truly our fellowship is with the Father, and with his Son Jesus Christ. And these things write we unto you, that your joy may be full.
Prayer Bears
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Always here praying!
Hebrews 6:18-20: That by two immutable things, in which it was impossible for God to lie, we might have a strong consolation, who have fled for refuge to lay hold upon the hope set before us: Which hope we have as an anchor of the soul, both sure and stedfast, and which entereth into that within the veil; Whither the forerunner is for us entered, even Jesus, made an high priest for ever after the order of Melchisedec.
Prayer Bears
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Here praying!
Psalm 71:1-3 In thee, O LORD, do I put my trust: let me never be put to confusion. Deliver me in thy righteousness, and cause me to escape: incline thine ear unto me, and save me. Be thou my strong habitation, whereunto I may continually resort: thou hast given commandment to save me; for thou art my rock and my fortress.
Prayer Bears
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Hi Alicia!!!
I found the web address for your blog sitting by Dotty's work stuff! I hope you are doing well and want to remind you that I am waiting for you to get back to St. Louis so I can take you to the ZOO!
The following is one of my favorite bible verses!
Jeremiah 29:11 "For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future."
Keep smiling!
Know that I'm always here praying!
Psalm 71:5-7: For thou art my hope, O Lord GOD: thou art my trust from my youth. By thee have I been holden up from the womb: thou art he that took me out of my mother's bowels: my praise shall be continually of thee. I am as a wonder unto many; but thou art my strong refuge.
Prayer Bears
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Praying right now!
Psalm 71:14-16 But I will hope continually, and will yet praise thee more and more. My mouth shall shew forth thy righteousness and thy salvation all the day; for I know not the numbers thereof. I will go in the strength of the Lord GOD: I will make mention of thy righteousness, even of thine only.
Prayer Bears
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Lifting up prayer right now!
Isaiah 63:7-9: I will mention the lovingkindnesses of the LORD, and the praises of the LORD, according to all that the LORD hath bestowed on us, and the great goodness toward the house of Israel, which he hath bestowed on them according to his mercies, and according to the multitude of his lovingkindnesses. For he said, Surely they are my people, children that will not lie: so he was their Saviour. In all their affliction he was afflicted, and the angel of his presence saved them: in his love and in his pity he redeemed them; and he bare them, and carried them all the days of old.
Prayer Bears
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Praying in Seattle!
2 Samuel 22:2-4 And he said, The LORD is my rock, and my fortress, and my deliverer; The God of my rock; in him will I trust: he is my shield, and the horn of my salvation, my high tower, and my refuge, my saviour; thou savest me from violence. I will call on the LORD, who is worthy to be praised: so shall I be saved from mine enemies.
Prayer Bears
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Continuing to pray!
2 Samuel 22:29-31 For thou art my lamp, O LORD: and the LORD will lighten my darkness. For by thee I have run through a troop: by my God have I leaped over a wall. As for God, his way is perfect; the word of the LORD is tried: he is a buckler to all them that trust in him.
Prayer Bears
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Praying right now!
Psalms 66:8-10 O bless our God, ye people, and make the voice of his praise to be heard: Which holdeth our soul in life, and suffereth not our feet to be moved. For thou, O God, hast proved us: thou hast tried us, as silver is tried.
Prayer Bears
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Praying!
Psalms 29:11 The LORD will give strength unto his people; the LORD will bless his people with peace.
Prayer Bears
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Continuing to lift up prayers!
Psalms 61:1-4 Hear my cry, O God; attend unto my prayer. From the end of the earth will I cry unto thee, when my heart is overwhelmed: lead me to the rock that is higher than I. For thou hast been a shelter for me, and a strong tower from the enemy. I will abide in thy tabernacle for ever: I will trust in the covert of thy wings. Selah.
Prayer Bears
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Praying in Seattle!
Psalms 62:5-7 My soul, wait thou only upon God; for my expectation is from him. He only is my rock and my salvation: he is my defence; I shall not be moved. In God is my salvation and my glory: the rock of my strength, and my refuge, is in God.
Prayer Bears
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Know that I'm here lifting up thoughts and prayers.
Psalms 107:28-31 Then they cry unto the LORD in their trouble, and he bringeth them out of their distresses. He maketh the storm a calm, so that the waves thereof are still. Then are they glad because they be quiet; so he bringeth them unto their desired haven. Oh that men would praise the LORD for his goodness, and for his wonderful works to the children of men!
Prayer Bears
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Praying right now!
Psalms 40:16-17 Let all those that seek thee rejoice and be glad in thee: let such as love thy salvation say continually, The LORD be magnified. But I am poor and needy; yet the Lord thinketh upon me: thou art my help and my deliverer; make no tarrying, O my God.
Prayer Bears
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The Lord will always be there to get you through whatever you have to face. Praying!
2 Corinthians 12:9-10 And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me. Therefore I take pleasure in infirmities, in reproaches, in necessities, in persecutions, in distresses for Christ's sake: for when I am weak, then am I strong.
Prayer Bears
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Christ Himself gives us these promises. Know that I'm here praying!
Revelation 21:5-7 And he that sat upon the throne said, Behold, I make all things new. And he said unto me, Write: for these words are true and faithful. And he said unto me, It is done. I am Alpha and Omega, the beginning and the end. I will give unto him that is athirst of the fountain of the water of life freely. He that overcometh shall inherit all things; and I will be his God, and he shall be my son.
Prayer Bears
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Continuing to lift up prayers!
Psalms 5:11-12 But let all those that put their trust in thee rejoice: let them ever shout for joy, because thou defendest them: let them also that love thy name be joyful in thee. For thou, LORD, wilt bless the righteous; with favour wilt thou compass him as with a shield.
Prayer Bears
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Praying!
Isaiah 25:8-9: He will swallow up death in victory; and the Lord GOD will wipe away tears from off all faces; and the rebuke of his people shall he take away from off all the earth: for the LORD hath spoken it. And it shall be said in that day, Lo, this is our God; we have waited for him, and he will save us: this is the LORD; we have waited for him, we will be glad and rejoice in his salvation.
Prayer Bears
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I was out of town last week which is why I didn't stop by.
Know that you continue to be in my thoughts and prayers!
Psalm 9:9-10 The LORD also will be a refuge for the oppressed, a refuge in times of trouble. And they that know thy name will put their trust in thee: for thou, LORD, hast not forsaken them that seek thee.
Prayer Bears
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Continuing to pray in Seattle!
Psalms 27:7-9 Hear, O LORD, when I cry with my voice: have mercy also upon me, and answer me. When thou saidst, Seek ye my face; my heart said unto thee, Thy face, LORD, will I seek. Hide not thy face far from me; put not thy servant away in anger: thou hast been my help; leave me not, neither forsake me, O God of my salvation.
Prayer Bears
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Still praying in Seattle!
Psalm 121:1-4: I will lift up mine eyes unto the hills, from whence cometh my help. My help cometh from the LORD, which made heaven and earth. He will not suffer thy foot to be moved: he that keepeth thee will not slumber. Behold, he that keepeth Israel shall neither slumber nor sleep.
Prayer Bears
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