I KNOW IT HAS BEEN A VERY VERY LONG TIME SINCE I UPDATED. THE SAYING IS THE FEWER THE UPDATES THE BETTER SHE IS. NOT IN OUR CASE.... WE HAVE BEEN IN THE HOSPITAL MOST OF THE PAST TWO MONTHS AND I DID NOT HAVE MY LAP TOP.
SHE WAS MED FLIGHTED YESTERDAY FROM WESLEY HOSPITAL BACK HOME AND WE ARE CURRENTLY IN CHILDREN'S IN CINCINNATI. WE ALREADY MISS THE NURSES FROM HOME, ALICIA WAS FINALLY STARTING TO BE NICE. WE ALSO HAVE VERY GOOD NURSES HERE, AND ALICIA IS VERY WELL KNOWN.
ANYWAY THE REASON FOR BEING MED FLIGHTED IS DUE TO ANOTHER LIN INFECTION. THIS TIME IT IS YEAST, WHICH I HEARD IT IS NOT EASY TO GET RID OF. THIS IS THE SECOND INFECTION SINCE THIS LINE WAS PLACED. THE SURGEON WHO PLACED THIS LINE SAID IT WOULD BE NEXT TO IMPOSSIBLE TO PLACE ANOTHER ONE BECAUSE ALICIA'S MAIN ARTERIES ARE COLLAPSED. SO RIGHT NOW THE BMT DOCS AND SURGEONS ARE FIGHTING OVER IF IT SHOULD BE PULLED OR TRY TO SAVE IT. YEAST IS VERY HARD TO GET RID OF AND STICKS TO LINES. IF THE LINE IS PULLED THERE IS A CHANCE THAT ANOTHER ONE COULD NOT BE PLACED AND SHE WOULD LOOSE ALL ACCESS AND THAT IS NOT GOOD.
THE PLAN NOW IS TO DO AN MRI IN THE MORNING TO LOOK AT HER VEINS AND SEE IF THEY WOULD BE ABLE TO REPLACE IT. IN THE MEANTIME THE ARE RAISING THE DOSE OF ANTI FUNGAL GOING THROUGH HER LINE IN HOPES TO FIGHT THE BACTERIA.
I AM NOT SURE HOW LONG WE WILL BE HERE THIS TIME BUT IT SOUNDS LIKE IT MIGHT BE A WHILE. I PROMISE TO UPDATE WITH ANY NEW PLANS.
MEEMA
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
Monday, September 6, 2010
IN CINCINNATI ONCE AGAIN
Posted by Michelle at 2:04 PM
Subscribe to:
Post Comments (Atom)
Posts
.jpg)
.jpg)
3 comments:
Thanks for the update! Although it would have been much better if no news was good news! Hope they can save the line!
Am here praying!
Proverbs 3:5-6 Trust in the LORD with all thine heart; and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths.
Prayer Bears
My email address
Praying hard in Seattle!
Psalms 46:1-5 God is our refuge and strength, a very present help in trouble. Therefore will not we fear, though the earth be removed, and though the mountains be carried into the midst of the sea; Though the waters thereof roar and be troubled, though the mountains shake with the swelling thereof. Selah. There is a river, the streams whereof shall make glad the city of God, the holy place of the tabernacles of the most High. God is in the midst of her; she shall not be moved: God shall help her, and that right early.
Prayer Bears
My email address
What amazing comfort these verses give! Praying!
Romans 8:26-27 Likewise the Spirit also helpeth our infirmities: for we know not what we should pray for as we ought: but the Spirit itself maketh intercession for us with groanings which cannot be uttered. And he that searcheth the hearts knoweth what is the mind of the Spirit, because he maketh intercession for the saints according to the will of God.
Prayer Bears
My email address
Post a Comment