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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Friday, May 22, 2009

FOOD!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!


YEAH FOOD!!!!!!!!!!!!!!!!!!!!!!!!! THE SIX CENTS WORKED!!!!!!!!!!!!!!!!!!!!! Of course when the spaghetti got here it was not want she wanted. She wanted squares (Ravioli's) instead but SHE GOT TO EAT!!!!!!!!!!!!!!!!!!!!!!! She seems to be feeling a lot better, they plan is to keep her on the antibiotics until the 27th and see how she is doing then. The stools are still very runny but they have slowed down which is good. She hopefully will be taken off of the Tpn's tomorrow as long as she keeps eating.
She is having big time Theo withdraws. Every time we walk in the hospital here in Cincinnati she asks for Theo. Well this time he has been in Boston with a child life specialist. I heard he came back yesterday and is planning to surprise Alicia. Since Monday they have been writing letters back and forth. Meagan with Child life put a mail box on Alicia's door and every morning there has been a letter from Theo and then Alicia writes one back to Theo. This mornings letter asked if she wanted to play today?????
I plan on talking to Michelle a little later today so in my next update I will let everyone know how she is doing. Please remember all of the children going through Transplant and each and everyone of our FA children as well.

5 comments:

Dianne said...

YEAH! So glad Alicia got to eat. Great news!!! Hopefully the reunion with Theo is right around the corner. Have a good day. Love, Dianne

Mary Ann G. said...

Food, glorious food! Finally here! So glad to hear that ...it was quite a bargain for 6 cents, right?

Hope her reunion with Theo is fun.

Please tell Stacy's parents that so many of us are praying for them.
Love, Mary Ann

Charisse said...

Ha! That is great and amusing! I hope Alicia enjoyed her day with Theo!
Love Charisse

Anonymous said...

Great news! i had spaghetti for dinner, too!
Know that I'm here praying!
Psalms 31:24 Be of good courage, and he shall strengthen your heart, all ye that hope in the LORD.
Prayer BearsMy email address

Tracy said...

I am so sorry to hear about the loss of little Stacy. May he fly high in the sky with the angels free from his FA.

Its great to meet you guys. So glad Miss Alicia was able to have some tastey food. I bet she loved it.

www.caringbridge.org/visit/margaretreed1