We had an appointment today with Dr Davies which we had another x-ray prior to and she said it looks a lot better!!!!!!!!!!!!!!!! Alicia still has loose stools but they have slowed way down. She should only be on the antibiotics for a couple of more days for the bacteria and it should be all uphill from here.
Dr Davies said she still wants us to stay in Cincinnati for a while to watch her after the antibiotics are done and we are still planning her year work up for the end of next week. The big issue is the follow up care from home. Dr Davies said that we have to come up with a different plan before we can go home. Alicia's Pediatrician is an option and Dr Davies is calling her this week.
I will update more when I have any news. Thank you for the prayers once again, God defiantly heard them all.
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
Tuesday, May 26, 2009
Good News!!!!!!!!!!!!!!!!!!
Posted by Michelle at 9:18 PM
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5 comments:
Glad to hear Alicia is feeling better. Love, Dianne
Oh so thankful for the good news!
Know that your family is always in my thoughts and prayers!
Psalms 9:9-10 The LORD also will be a refuge for the oppressed, a refuge in times of trouble. And they that know thy name will put their trust in thee: for thou, LORD, hast not forsaken them that seek thee.
Prayer BearsMy email address
Alicia, you're my hero.
That is fantastic news! So glad to hear. Hope all continues to go well and the year work up is amazing! We will continue to think about you guys and pray for you
That is great news. I pray that the follow up all gets worked out.
Lots of love,
Charisse
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