WHAT A RIDE!!!!!!!!!!!!!!!!!!!!!!!!!

O MY WHAT A RIDE WE HAVE BEEN ON FOR THIS PAST WEEK!!!!!!!!!!!!!!!!!!!!! FIRST I WANT TO THANK TINA SO VERY VERY MUCH FOR KEEPING EVERYONE UPDATED. TINA YOU ARE SUCH A GREAT FRIEND!!!!!!!!!!!!!!!!!!!! I ALSO WANT TO THANK EVERYONE FOR THE MANY MANY MESSAGES AND PRAYERS. WHEN I FINALLY GOT HERE TO CINCINNATI AND HAD ACCESS TO THE INTERNET UNLIKE WHERE WE WERE, I WAS SO AMAZED BY ALL OF THE SUPPORT AND MESSAGES. THAN YOU EVERYONE SO MUCH. BY MOST THE ULTIMATE THANKS GOES TO GOD FOR LEADING ME TO MAKE THE RIGHT DECISIONS ALL WEEK AND GETTING MY BEST FRIENDS CARE BACK IN DR DAVIES HANDS.

I DO NOT EVEN KNOW WHERE TO BEGIN. ON MOTHERS DAY I GUESS IS WHEN MY EYES WERE WIDE OPEN. ALICIA POOPED 19 TIMES AND THIS IS NO EXAGGERATION. I WOKE UP THE NEXT MORNING AND CALLED CINCINNATI AND THEY ORDERED LABS RIGHT AWAY TO CHECK ALL OF HER ELECTROLYTES. TWO HOURS LATER I GOT A CALL FROM CINCY AND WAS TOLD ALICIA HAD A POTASSIUM COUNT OF 1.8 AND NEEDED TO TAKE HER TO THE HOSPITAL. WE WERE ADMITTED TO ICU AND FOR THE NEXT SIX DAYS SHE RECEIVED BOLUS AFTER BOLUS OF POTASSIUM AND PHOSHORUS AND MAGNESIUM. HER STOOLS WERE STILL VERY BAD SO IT WAS LIKE A CYCLE. GIVE ELECTROLYTES, ALICIA POOP, CHECK LABS, GIVE MORE ELECTROLYTES AND BACK TO THE BEGINNING.

FINALLY ON SATURDAY THEY DECIDED TO REPLACE ALICIA'S NG TUBE SINCE SHE WAS LOOSING WEIGHT AND THEY WANTED TO START SOME TUBE FEEDING. EARLIER IN THE WEEK THEY WERE PUSHING HARD TO PLACE A G TUBE BUT I INSISTED THEY CHECK WITH DR DAVIES, WHICH SHE TOLD THEM NO. AFTER THEY PLACED THE NG THEY DID AN X RAY TO CHECK THE PLACEMENT AND THAT IS WHEN THE WORST PART OF THE NIGHTMARE BEGAN. THE X RAY SHOWED A LOT OF FREE AIR IN HER ABDOMEN SO SHE WAS IMMEDIATELY TAKEN FOR A CAT SCAN WHICH SHOWED A LOT OF AIR IN THE LININGS OF HER COLON WHICH THEY SAID WAS LEAKING OUT INTO HER ABDOMEN. WITHIN 30 MINUTES THEY WERE COMING IN WITH CONSENT FORMS TO OPERATE AND EXPLORE AND POSSIBLY REMOVE PART OF HER COLON. I OF COURSED FREAKED AND SAID O NO YOU MOST DEFIANTLY HAVE TO RUN THIS ONE BY DR DAVIES. I THEN ASKED ABOUT THE PROCEDURE AND SHE SAID ALICIA WOULD BE CUT OPEN "THE OLD FASHION WAY" AND POSSIBLY COME OUT WITH A COLOSTOMY BAG. I LET THEM KNOW I WAS NOT SIGNING ANYTHING UNTIL I WAS SURE THAT DR DAVIES WAS OK WITH THIS. I CALLED ERIKA AND DENISE AND THEY WERE THERE WITHIN MINUTES. ERIKA TOLD THEM THEY WERE CRAZY AND NOT CUTTING ON ALICIA. I HAD TO TELL ERIKA TO SHUT UP TWICE. SHE WAS NOT HAVING IT. WELL DR DAVIES AGREED WITH ERIKA AND TOLD ME THEY WERE SENDING FOR US THE NEXT MORNING. SO I ONLY HAD A FEW HOURS TO PACK WHICH I HAD TO LEAVE SOME OF MY BAGS BEHIND CAUSE I COULD ONLY BRING ONE. NEEDLESS TO SAY IT WAS ALL OF ALICIA'S CLOTHES SO I AM HERE WITH NOTHING FOR MYSELF. THE MED AIR GROUP AND NURSES FROM CINCY ARRIVED AROUND TEN YESTERDAY MORNING AND OFF WE WENT....................................

THIS IS OF ALICIA IN THE AIRPLANE WHICH GOT US FROM KANSAS TO CINCINNATI IN ONE HOUR AND 29 MINUTES.


ANOTHER OF HER ON THE PLANE...........................................................

THIS IS THE PLANE THEY CAME FOR US ON......................................................

BRINGING HER OFF THE PLANE....................................................THIS IS THE AMBULANCE THAT WAS WAITING AT THE AIRPORT.................BEING PUT IN THE AMBULANCE AND ON OUR WAY TO CHILDREN'S HOSPITAL...

I FOR GOT TO MENTION AS ALICIA WAS BEING WHEELED OUT ON THE STRETCHER THE NURSE RAN UP AND HANDED THE CREW A PIECE OF PAPER THE HAD A NAME OF A BACTERIA THAT CAME BACK POSITIVE IN HER STOOL CULTURE WHICH IS LIFE THREATENING IF GETS IN HER BLOOD STREAM.

THE PLAN NOW IS TO START HER ON THREE ANTI BIOTICS WHICH THEY DID LAST NIGHT, THEY ALSO TOOK AN X RAY WHICH CONFIRMED NEMATOSIS (SP??) SO WHAT I WAS TOLD IS WITH TIME OF LETTING HER GUT HEAL WHICH MEANS NO FOOD OR MEDS BY MOUTH AND DAILY X RAYS ALONG WITH THE ANTI BIOTICS SHE SHOULD BE ABLE TO HEAL ON HER OWN. ( NO SURGERY HMMMMM?????)

THE FOOD PART IS THE HARDEST. ALICIA IS LITERALLY STARVING. SHE NOW IS BEGGING FOR JUST ONE BITE. SHE KEEPS ASKING FOR DR DAVIES PHONE NUMBER AND SAYS SHE NEEDS TO HURRY AND FIX HER TUMMY TODAY CAUSE SHE JUST WANTS ONE CHICKEN NUGGET. IT IS SO HORRIBLE TO SIT HER AND WATCH TEARS RUN DOWN HER FACE AS SHE TELLS ME SHE IS HUNGRY. THEY SAID SHE MIGHT NOT GET ANYTHING OT EAT FOR TWO TO THREE WEEKS. PLEASE PRAY THE HUNGER PAINS GO AWAY.

THANK YOU FOR SOOOOO MUCH SUPPORT AND PRAYERS!!!!!!!!!!!!!!!!