Alicia is doing a lot better. They started her NG feeds yesterday which she tolerated very well. The plan now is to let us go to the RMH, but to stay around Cincinnati for a while, which I am OK with. The closer to Dr Davies, the better.
The Nurses and Doc's have all been so great. I am so very glad we got Alicia here, who knows what would of been the outcome if we were still in Kansas. The Doc' in Kansas were great also but by any means the care for a child that has had a Transplant is the BEST in where the Doc's know about FA!!!!!!!!!!!!
Dr Davies already has an appointment set up with Alicia for Tuesday which she is going to have another x-ray done on her stomach to see if is better. Alicia still has her year post transplant workup which was scheduled before all of this came up. Dr Davies also wants Audiology to see her while we are here also.
I am not sure if the room we are in at the Rmh has Internet access, if not my friend across the hall does so I will update more soon. Thanks for all of your support.
P.S.
Stacy was laid to rest yesterday at 2pm. I talked to his mom and she said it was very beautiful.
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
Sunday, May 24, 2009
RMH
Posted by Michelle at 8:23 AM
Subscribe to:
Post Comments (Atom)
Posts
.jpg)
.jpg)
4 comments:
Thanks for the update Michelle. I am so happy to hear Alicia is doing better. Stacy's family has been in my thoughts and prayers.
Dianne
Hi Michelle,
an encouraging update. Good idea to stay around for a little while.
Thank you for updating us on Stacy and his family as well.
Love Charisse
So glad she's feeling better!
Continuing to lift up prayers!
1 Thessalonians 5:23-24 And the very God of peace sanctify you wholly; and I pray God your whole spirit and soul and body be preserved blameless unto the coming of our Lord Jesus Christ. Faithful is he that calleth you, who also will do it.
Prayer BearsMy email address
Stopping by to let you know I'm here praying!
Isaiah 26:3-4 Thou wilt keep him in perfect peace, whose mind is stayed on thee: because he trusteth in thee. Trust ye in the LORD for ever: for in the LORD JEHOVAH is everlasting strength:
Prayer BearsMy email address
Post a Comment