I am so sorry I have not updated since Tuesday. Everything is still going good with Alicia. We only had one scare and that was the first night she got out of the hospital. She had an episode of throwing up but nothing else since then and NO FEVER!!!!!!!
Alicia and Denise are having a lot of fun. We have been able to spend a lot of time together since Alicia is not in the Hospital, we will miss her when she leaves Tuesday. Alicia keeps saying when Ne Ne leaves Mommy is coming so now I got to figure out how to get Erika here quick.
Alicia had a clinic appt Friday and her Potassium is low so we are having to give it to her orally now also. Her med list is soooooooo long. They seem to add something every week but never take any away. I can not wait for the day when this all ends!!!!!!!!!!!!!!!!!!!!!!!
I will update more after Denise leaves. We took Alicia on the ferry across the river yesterday, she had so much fun. It was in the car of course. She thought is was so cool to put the car on a boat.
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
Sunday, January 18, 2009
Day +213
Posted by Michelle at 11:45 AM
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4 comments:
Thinking of you...love, Dianne
I am so glad that Alicia is doing ok now! Praise the Lord!
Sorry for not writing the last few posts.
Love Charisse
Glad all's going as well as can be expected...
We have such amazing eyewitness testimony of Jesus and just a fraction of what He did while He was visibly present here on earth. Look only to Him! Praying!
1 John 1:1-4 That which was from the beginning, which we have heard, which we have seen with our eyes, which we have looked upon, and our hands have handled, of the Word of life; (For the life was manifested, and we have seen it, and bear witness, and shew unto you that eternal life, which was with the Father, and was manifested unto us;) That which we have seen and heard declare we unto you, that ye also may have fellowship with us: and truly our fellowship is with the Father, and with his Son Jesus Christ. And these things write we unto you, that your joy may be full.
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Continuing to lift up prayers!
Psalms 34:17-19 The righteous cry, and the LORD heareth, and delivereth them out of all their troubles. The LORD is nigh unto them that are of a broken heart; and saveth such as be of a contrite spirit. Many are the afflictions of the righteous: but the LORD delivereth him out of them all.
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