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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Friday, January 9, 2009

day+204

this is denise i am updating for michelle. last night around 10pm alicia started throwing up and had a temp of 101 so michelle took her to the er and they were there all night and they finally admitted her at 7 this morning and nichelle is exhausted. alicia tested positive for pnemonia and she needs everyones prayers. michelle is relly exhausted and needs prayers also. i will be there monday for a week to help her and let her get some rest. please keep them in your prayers-Denise aka NeNe

3 comments:

Anonymous said...

Oh honey. Know that we are here praying for strength for you and Alicia. Hang in there. You've done such a great job.

Charisse said...

Oh dear. That is not very good. Know that we are praying for Alicia and Michelle.
Love Charisse

Anonymous said...

Please know that I've been reading all the posts and have been so happy for you all.
HAPPY TIMES WILL COME AGAIN SOON.
You are prayed for daily and know that that will continue.
Thinking of you and sending warm wishes for a quick recovery for Alicia and strength and good health for Michelle too.
Love,
Mary Ann