Day +116

The last three days have went by so fast. I have been so busy and unable to stop. I have made up my mind that we are going full force come Monday. Alicia is looking so forward to leaving ( yes she found out and she promised no fevers ). I figured all I can do is give it my best shot and if it is to much to handle than we can always come back. I know I can do it though. After going over the schedule they had made for me I moved times around and came up with Midnight to 6am for me to sleep and a few hours during the day for naps when needed. I get less sleep than that in here!!!!!!!!!!!!

Home Health has been working with me for two solid straight days. I think I have everything down but they will also spend three days with us at the RMH just to make sure. We also got a new room at the RMH. It is a transplant suite. I have been on the waiting list for four months now. They called me yesterday and offered it to me so I had to run over there and move everything from our old room to our new one. The new one is way better. Alicia has her own room and there is Internet and cable and it is alot bigger. I am soooo tired from moving everything but I still have to put it away. I just threw it all in the new room so I could get back to Alicia. I figured I would go over there tomorrow and try to at least get it out of the way for when I bring Alicia on Monday. Tina and Keith are going to help me move all that I have left in the hospital room tomorrow and then Monday it will just be getting Alicia over there.

Tuesday will be the only day I will not have to be at the hospital so that will give me alot of time to get everything situated before the busy days start on Wednesday.

Alicia has been feeling great. Today we left the room for a walk around 4pm. We were just going to get some candy out of the machine but it ended up being a very long walk. Alicia needed it and so did I. We even went outside to get some fresh air. Alicia walked the whole way. We only had to rest two times. She loves it when she is unhooked from all the meds and the pole. Here are a few pictures I took today..............

Of course she did not get to touch anything and we walked very slow but it did us both good to get off the BMT floor.

Alicia is also getting very excited for Mommy and Daddy to come back. I keep telling her they will be here right before her Birthday so now she keeps telling everyone that her Birthday is coming soon. ( how cute ) I can not wait to see the boys!!!!!!!!!!!!!!!!!!!!!!

I also found out a couple of days ago that Denise will be here the whole week of Thanksgiving with us. I was really dreading being alone on Thanksgiving. I am sooooo happy Denise will be here. I told her we might end up having sandwiches in the RMH room but at least we won't be alone. Hopefully she will be feeling better by then.

Well it is late and tomorrow is another busy day. I have a little more packing to do tonight and then ti bed for us. Thank you so much everyone for following Alicia's Journey. The prayers and support are very much needed to get through what we have so far and also what we have also ahead of us.