WOW I THINK I FIGURED OUT HOW UPDATE THE SITE.I AM NOT VERY COMPUTER SMART. LETS SEE WHERE TO START. MICHELLE IS HANGING IN THERE, NIGHT BEFORE LAST SHE WOKE UP WITH CHILLS AND SPIKED A FEVER AND AS QUICK AS IT CAME IT WAS GONE. THIS HOSPITAL LEAVES ALOT TO BE DESIRED. SHE PUSHED HER BUTTON AND AN HOUR LATER JUST AS SHE THOUGHT SHE WAS GOING TO HAVE TO CRAWL DOWN THE HALL WAY TO GET HELP A NURSE CAME IN. THEY DID A TAP THENEXT MORNING AND IT SHOWED INFECTION IS BACK ALSO NOW INFECTION IN HER BLOOD STREAM. THE MED THEY ARE GIVING HER TO REROUTE BLOOD TO HER KIDNEY SEEMS TO BE HELPING CUZ KIDNEY NUMBERS ARE STAYING STABLE BUT WE HAVE BEEN TOLD ITS JUST A TEMP FIX TO FIGURE OUT HOW TO FIX KIDNEYS. SHE IS VERY FRUSTRATED AS I AM TOO CUZ WE HAVE BEEN WAITING A WEEK FOR A PILOT TO PICK UP OUR REQUEST TO GET HER HOME. NO LUCK SO FAR. SHE JUST REALLY WANTS TO GO HOME. ON A BETTER NOTE ALICIA IS DOING AWESOME. ERIKA AND ANSHON ARE ALSO DOING AWESOME LEARNIG HER CARE AND ALICIA ONLY HAS 2 DAYS TO MARK OFF THE CALENDAR AND SHE WILL BE HEADING HOME WITH MOMMY AND DADDY. SHE IS GETTING SO FAT. THE PANTS THAT SHE HAD TO HOLD UP WITH A BELT A MONTH AGO ARE NOW HARD TO BUTTON.SHE IS EATING EVERYTHING AND MAKING HAPPY PLATES FOR THE FIRST TIME IN HER LIFE. I WILL NOT LEAVE MICHELLE SO HOPEFULLY AN ANGEL IS SENT SOON TO TAKE HER HOME. I AM GOING TO PUSH THE PUBLISH BUTTON NOW AND IF I GOT THIS RIGHT ILL TRY TO UPDATE AGAIN SOON--------------DENISE
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
Saturday, August 8, 2009
Subscribe to:
Post Comments (Atom)
Posts
.jpg)
.jpg)
4 comments:
congratulations Denise; you are great. Thanks for the update; I'm hoping that a flight comes through soon and that Alicia continues to do well.
Well done, Denise! An update is greatly appreciated. I was wondering how Michelle was going and how close you were to finding someone to help her get home. Thanks, also, for the update on Alicia. That is so wonderful that she is doing well and is with her mummy and daddy. We are continuing to pray for Michelle and Alicia as always. Please update soon again with any more news. I check daily and pray for anymore needs that arise.
Lots of love,
Charisse
Thanks so much for the update, Denise! Been going crazy here wondering what was going on there. Isn't there something like Angel Flight who could help?
Thrilled to hear that Alicia's doing better! Praying so hard for you whole family!!!!!!
Romans 8:35, 37-39 Who shall separate us from the love of Christ? shall tribulation, or distress, or persecution, or famine, or nakedness, or peril, or sword?...Nay, in all these things we are more than conquerors through him that loved us. For I am persuaded, that neither death, nor life, nor angels, nor principalities, nor powers, nor things present, nor things to come, Nor height, nor depth, nor any other creature, shall be able to separate us from the love of God, which is in Christ Jesus our Lord.
Prayer Bears
My email address
Thanks so much for the update. I hope Michelle can get home ASAP! Denise, you are just the best. It is no wonder that you and Michelle are twins...because you BOTH are the greatest!! :) Dianne
Post a Comment