ALICIA IS OK. SHE IS STILL IN THE HOSPITAL. SH HHE GOT MOVED TO A REGULAR ROOM AND OUT OF INTENSIVE CARE AROUND 6 LAST NIGHT. NOONE IS FOR SERTAIN WHAT MADE HER FIGHT FOR AIR. HER NUMBERS ARE GOOD EXCEPT KIDNEY NUMBERS ARE ALITTLE HIGH. ITS UPSETING MICHELLE A GREAT DEAL THAT SHE CAN NOT BE WITH ALICIA. ERIKA HAS BEEN THERE THE WHOLE TIME EXCEPT WHEN I CAME UP TO GIVE HER A BREAK FOR A FEW HOURS. MICHELLE IS ALSO STILL IN HOSPITAL. THE CT SHOWED FLUID STILL. MULTIPLE DRS SAY ALL THE PAIN IS FROM HAVING 2 SURGERYS BACK TO BACK AND IS TAKING LONGER TO HEAL. IT IS HURTIN MICHELLE A GREAT DEAL THAT SHE CAN NOT BE THERE FOR ALICIA. THEY DID PUT A BIGGER DRAINAGE TUBE IN HER BUT SHE CAN GO WITH THAT AND MAY POSSIBLY GO HOME TONIGHT OR TOMORROW............................................DENISE
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
Monday, August 24, 2009
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6 comments:
Thinking of all of you...and praying. Love, Dianne
Thanks so much for the update, Denise!
Know that I'm here praying right now!
When darkness veils His lovely face,
I rest on His unchanging grace;
In every high and stormy gale
My anchor holds within the veil.
On Christ, the solid Rock, I stand;
All other ground is sinking sand.
Prayer Bears
My email address
Continuing to lift up prayers!
His oath, His covenant, and blood
Support me in the whelming flood;
When every earthly prop gives way,
He then is all my Hope and Stay.
On Christ, the solid Rock, I stand;
All other ground is sinking sand.
Prayer Bears
My email address
Thinking of you guys, and hoping things are going well. Love, Dianne
Hope you're getting better every day!
Know that I'm always here praying!
When He shall come with trumpet sound,
Oh, may I then in Him be found,
Clothed in His righteousness alone,
Faultless to stand before the throne!
On Christ, the solid Rock, I stand;
All other ground is sinking sand.
Prayer Bears
My email address
Hope that Alicia and Michelle are doing much better. Praying for you all.
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