UNEVENTFUL NIGHT

EVERYTHING SEEMS TO BE GOING WELL. ALICIA ACTUALLY BEHAVED HERSELF AND HAS NOT PULLED ANY SURPRISES. THEY PULLED OUT HER PICC AND NO SHE HAS A REGULAR IV TO HELP CLEAR HER SYSTEM. ALICIA IS TELLING EVERYONE NOW THAT THEY PULLED HER LINE BECAUSE SHE HAS SPIDERS INSIDE OF HER. THE PLAN WAS TO REPLACE THE PICC AFTER 72 HOURS BUT DOC DAVIES SAID SHE IS GOING TO AIT LONGER IF POSSIBLE. SHE SAID AS LONG AS SHE IS TOLERATING THE IV SHE WILL LEAVE IT IN TO BE POSSITIVE THAT THEY GET ALL OF THE SPIDERS OUT OF HER.


SHE IS DOWN IN THERAPY AT THE MOMENT. SHE WAS SOOOO CUTE. SHE IS EARING A PAGEANT DRESS THAT NE NE GOT HER AND IT FLAIRS OUT AND SHE LOVES TO DRESS WITH IT ON. ( GET READY KRISTIN SHE IS GOING TO WARE YOU OUT AT CAMP. )

ALICIA IS BACK I WILL UPDATE LATER.

MEE MA AND ALICIA

ANOTHER LINE GONE

WELL THEY ARE PULLING THE PICC LINE AGAIN. ALICIA DOES NOT KNOW YET SHE IS IN THERAPY, SHE IS GOING TO BE MAD. THE BACTERIA IS STILL GROWING SO DOC DAVIES WANTS THE LINE PULLED AND NOT REPLACED FOR AT LEAST 72 HOURS. SO SHE WILL BE GOING THROUGH GETTING ANOTHE LINE PUT IN AGAIN.


THIS IS ALSO GOING TO PROLONG US GOING HOME EVEN LONGER.W E WILL PROBABLY HAVE TO MOVE IN WITH ERIKA SINCE I AM NOT WORKING AND BILLS ARE DUE. AS LONG AS ALICIA IS OK THAT IS ALL THAT MATTERS.


ALICIA DID PULL ANOTHER LITTLE STUNT YESTERDAY. NEVER A DULL MOMENT WITH HER. ANY WAY SHE CALLED THE POLICE AND TOLD THEM HER MOMMY WASNT ANSWERING THE PHONE SO SHE COULD TELL HER HAPPY MOMMY'S DAY. SO WE HAD THE TALK ABOUT WHEN WAS THE RIGHT TIME TO CALL 911. LEAVE IT TO ALICIA.


WELL SHE IS BACK FROM THERAPY SO I WILL UPDATE LATER.

MICHELLE AND ALICIA

LEAVE IT TO ALICIA

THIS BRINGS BACK SO MANY MEMORIES..................  ALICIA IS DOING PRETTY WELL, SHE DID NOT EAT AT ALL YESTERDAY. TINA AND KEITH EVEN BROUGHT HER FAVORITE FROM MCDONALD'S BUT SHE DIDN'T TOUCH IT. (THANKS TINA AND KEITH) 

SHE HAD A NEW PICC LINE PLACED YESTERDAY AND SHE DID VERY WELL. NOW THERE IS TALK THAT IT MIGHT HAVE TO BE PULLED BACK OUT DUE TO THE VERY RARE BACTERIA THAT SEEMS TO STILL BE GROWING, SHE IS ON SEVERAL ANTIBIOTICS, TWO OF WHICH SHE HAS NEVER HAD. THE INFECTIOUS DISEASE TEAM IS ALSO INVOLVED AND ARE THE ONES WHO SWITCHEDTHE ANTIBIOTICS AND SUGGESTED THE LINE BE PULLED. I WAS TOLD BY HER DOCS THAT THERY WOULD DO EVERYTHING POSSIBLE TO NOT HAVE TO PUT HER THROUGH A NEW LINE AGAIN. THEY SHOULD OF JUST WAITED.


I HAVE BEEN HAVING A LOT OF PAIN MY SELF SINCE I HAVE BEEN HERE. MY AWESOME SISTER DENISE IS SENDING SOME MOR OF MY MEDS, I ONLY BROUGHT ENOUGH FOR A WEEK. I ALSO ONLY PACKED AND BROUGHT ENOUGH CLOTHES AND MONEY FOR THREE DAYS.................. LEAVE IT TO ALICIA LOL.

WE DID GET A ROOM AT THE RMH YESTERDAY, THE LIST WAS VERY LONG I AM SO HAPPY WE HAVE SOMEWHERE TO GO WHEN SHE IS RELEASED.

HAPPY MOTHERS DAY TO ALL OF THE MOTHERS AND A SPECIAL HAPPY MOTHERS DAY TO MY MOTHR AND ERIKA. I AM SOOO SORRY WE WILL NOT BE AT HOME TO PEND IT WITH YOU.

MICHELLE AND ALICIA

COKE NOT SPRITE

THE TALK ON THE BMT FLOOR IS ALICIA USED COKE TO FLUSH HER LINE THIS TIME NOT SPRITE..................... THE FUNNY THING IS I WOULDN'T PUT IT PAST HER.  RESULTS CAME BACK AND SHE IS GROWING THREE VERY VERY RARE TYPES OF BACTERIA. THEY PULLED HER PICC LINE YESTERDAY AND PLACED AN IV TO CLEAR HER SYSTEM. WE ARE GOING DOWN AT NOON TODAY TO REPLACE A NEW PICC LINE. SHE HAS NOT HAD ANY MORE FEVERS SINCE WE HAVE BEEN IN CINCINNATI SO THE ANTIBIOTICS ARE WORKING.

WE DID FINALLY GET A ROOM AT THE RMH FOR WHEN SHE IS RELEASED. DOC DAVIES WILL PROBABLY MAKE US STICK AROUND A WEEK OR SO AFTER HER TWO WEEK COURSE OF ANTIBIOTICS WHICH SHE WANTS DONE INPATIENT.

WE DID GET GOOD NEWS YESTERDAY. OUR SCHOLARSHIP WENT THROUGH AND OUR FLIGHT IS OFFICIALLY BOOKED FOR CAMP. WE ARE VERY EXCITED. LAST YEAR I WAS LAYING IN A HOSPITAL BED DURING CAMP, I AM SO GLAD WE GET TO GO THIS YEAR.

MICHELLE AND ALICIA

HAPPY MOTHERS DAY ERIKA........................ WE MISS YOU AND ARE VERY SAD WE WILL NOT BE TOGETHER ON MOTHERS DAY.

Heading to Cincinnati

The Medical transport team is due to be here in an hour from Cincinnati. They told us we could only bring one bag GREAT. We have three. It wasnt like this was planned, I have my fingers crossed that they will make an exception, I do not know which one I could leave.


Results came back and Alicia is growing MANY bugs. I hope she did not mess with her line again with out me knowing. She is feeling a lot better, the antibiotics have kicked in but I believe they will be pulling her line when we get to Cincinnati.

This was sooo not planned, but then again Alicia is the best at surprises. I have a feeling we will be in Cincinnati at least three weeks. Please keep her in your prayers.

Michelle

St Louis

I know it has been a long while since I updated. Alicia is still about the same she is still fighting GVHD and we are still going to Cincinnati monthly to see Doc Davies.

We were due to be in Cincinnati today, but it has not went as planned. We are currrently in St louis Childrens. Alicia is growing gram neg rods and has had a fever as high as 103. There is talk of transporting her to Cincinnati. Please keep her in your prayers once again.

Michelle