I know it has been a long while since I updated. Alicia is still about the same she is still fighting GVHD and we are still going to Cincinnati monthly to see Doc Davies.
We were due to be in Cincinnati today, but it has not went as planned. We are currrently in St louis Childrens. Alicia is growing gram neg rods and has had a fever as high as 103. There is talk of transporting her to Cincinnati. Please keep her in your prayers once again.
Michelle
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
Monday, May 3, 2010
St Louis
Posted by Michelle at 7:09 AM
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5 comments:
Dear Michelle,
Thinking of you and Alicia and praying every day.
Am sorry to hear this...hope she can get to Cincy and get the treatment she needs.
Keeping you both in prayer and my thoughts,
Love you,
Mary Ann
Praying...and thinking of you.
Dianne Ploetz
Wow! An update! thank you!!!!!!!!
Continuing to pray!
Romans 8:35, 36-39 Who shall separate us from the love of Christ? shall tribulation, or distress, or persecution, or famine, or nakedness, or peril, or sword?...Nay, in all these things we are more than conquerors through him that loved us. For I am persuaded, that neither death, nor life, nor angels, nor principalities, nor powers, nor things present, nor things to come, Nor height, nor depth, nor any other creature, shall be able to separate us from the love of God, which is in Christ Jesus our Lord.
Prayer Bears
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Thinking of you guys, and hoping today is a good day. Dianne
Thinking of you, and hoping today is a good day!! :) Dianne
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