THIS BRINGS BACK SO MANY MEMORIES.................. ALICIA IS DOING PRETTY WELL, SHE DID NOT EAT AT ALL YESTERDAY. TINA AND KEITH EVEN BROUGHT HER FAVORITE FROM MCDONALD'S BUT SHE DIDN'T TOUCH IT. (THANKS TINA AND KEITH)
SHE HAD A NEW PICC LINE PLACED YESTERDAY AND SHE DID VERY WELL. NOW THERE IS TALK THAT IT MIGHT HAVE TO BE PULLED BACK OUT DUE TO THE VERY RARE BACTERIA THAT SEEMS TO STILL BE GROWING, SHE IS ON SEVERAL ANTIBIOTICS, TWO OF WHICH SHE HAS NEVER HAD. THE INFECTIOUS DISEASE TEAM IS ALSO INVOLVED AND ARE THE ONES WHO SWITCHEDTHE ANTIBIOTICS AND SUGGESTED THE LINE BE PULLED. I WAS TOLD BY HER DOCS THAT THERY WOULD DO EVERYTHING POSSIBLE TO NOT HAVE TO PUT HER THROUGH A NEW LINE AGAIN. THEY SHOULD OF JUST WAITED.
I HAVE BEEN HAVING A LOT OF PAIN MY SELF SINCE I HAVE BEEN HERE. MY AWESOME SISTER DENISE IS SENDING SOME MOR OF MY MEDS, I ONLY BROUGHT ENOUGH FOR A WEEK. I ALSO ONLY PACKED AND BROUGHT ENOUGH CLOTHES AND MONEY FOR THREE DAYS.................. LEAVE IT TO ALICIA LOL.
WE DID GET A ROOM AT THE RMH YESTERDAY, THE LIST WAS VERY LONG I AM SO HAPPY WE HAVE SOMEWHERE TO GO WHEN SHE IS RELEASED.
HAPPY MOTHERS DAY TO ALL OF THE MOTHERS AND A SPECIAL HAPPY MOTHERS DAY TO MY MOTHR AND ERIKA. I AM SOOO SORRY WE WILL NOT BE AT HOME TO PEND IT WITH YOU.
MICHELLE AND ALICIA
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
Saturday, May 8, 2010
LEAVE IT TO ALICIA
Posted by Michelle at 8:18 AM
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3 comments:
THinking of you...and sending hugs!! Dianne
You BOTH need to start behaving yourselves!
Continuing to lift up prayers!
Ephesians 3:20-21 Now unto him that is able to do exceeding abundantly above all that we ask or think, according to the power that worketh in us, Unto him be glory in the church by Christ Jesus throughout all ages, world without end. Amen.
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Always praying in Seattle!
Hebrews 4:14-16 Seeing then that we have a great high priest, that is passed into the heavens, Jesus the Son of God, let us hold fast our profession. For we have not an high priest which cannot be touched with the feeling of our infirmities; but was in all points tempted like as we are, yet without sin. Let us therefore come boldly unto the throne of grace, that we may obtain mercy, and find grace to help in time of need.
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