THE TALK ON THE BMT FLOOR IS ALICIA USED COKE TO FLUSH HER LINE THIS TIME NOT SPRITE..................... THE FUNNY THING IS I WOULDN'T PUT IT PAST HER. RESULTS CAME BACK AND SHE IS GROWING THREE VERY VERY RARE TYPES OF BACTERIA. THEY PULLED HER PICC LINE YESTERDAY AND PLACED AN IV TO CLEAR HER SYSTEM. WE ARE GOING DOWN AT NOON TODAY TO REPLACE A NEW PICC LINE. SHE HAS NOT HAD ANY MORE FEVERS SINCE WE HAVE BEEN IN CINCINNATI SO THE ANTIBIOTICS ARE WORKING.
WE DID FINALLY GET A ROOM AT THE RMH FOR WHEN SHE IS RELEASED. DOC DAVIES WILL PROBABLY MAKE US STICK AROUND A WEEK OR SO AFTER HER TWO WEEK COURSE OF ANTIBIOTICS WHICH SHE WANTS DONE INPATIENT.
WE DID GET GOOD NEWS YESTERDAY. OUR SCHOLARSHIP WENT THROUGH AND OUR FLIGHT IS OFFICIALLY BOOKED FOR CAMP. WE ARE VERY EXCITED. LAST YEAR I WAS LAYING IN A HOSPITAL BED DURING CAMP, I AM SO GLAD WE GET TO GO THIS YEAR.
MICHELLE AND ALICIA
HAPPY MOTHERS DAY ERIKA........................ WE MISS YOU AND ARE VERY SAD WE WILL NOT BE TOGETHER ON MOTHERS DAY.
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
Friday, May 7, 2010
COKE NOT SPRITE
Posted by Michelle at 8:34 AM
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3 comments:
Oh my God,I can't believe what Alicia does!!! Too bad you can't put some kind of lock on her PICC line!!!
I hope that this is the last of the problems for both of you.
I'm so glad that you got the scholarship to go to camp and I hope that you thoroughly enjoy yourself and relax.
I'll miss not seeing you but it will be so good for you to be there and see friends, etc.
Wishing you a very happy Mothers' Day.
Love and prayers continuing to come your way,
Mary Ann
Thanks so much for the update Michelle. You guys are in my thoughts and prayers!! Love always, Dianne
Hope she's over the worst of it and she'll start improving now! But yeah, that whole flushing the PICC line thing...that's gotta stop!
Praying!
Ephesians 3:14-19 For this cause I bow my knees unto the Father of our Lord Jesus Christ, Of whom the whole family in heaven and earth is named, That he would grant you, according to the riches of his glory, to be strengthened with might by his Spirit in the inner man; That Christ may dwell in your hearts by faith; that ye, being rooted and grounded in love, May be able to comprehend with all saints what is the breadth, and length, and depth, and height; And to know the love of Christ, which passeth knowledge, that ye might be filled with all the fulness of God.
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