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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Friday, June 13, 2008

Day -6

I actually got six hours of sleep last night. Alicia was awake past Midnight but when she finally went to slepp she was out like a light bulb.

I found out alot of the ropes yesterday about how things will be. They do vitals on all the children every four and Alicia went to sleep after the one at Midnight and slept through the one at 4am (so I heard cause i slept through it also)but the one at 8am woke her so that is when our day began.

The Doctors did rounds at 9am and Dr Davies was there. She is such an awesome Doctor and cares alot for our children. Alicia will start her Chemo today. One medication will last for 30 minutes for four days which is Fludarabine and the ATG will last for 8 hours for I believe five Days ( i might be wrong on the total days for that one) They said some kids have reactions to the AGT so it has me a little nervous.

Alicia's platelets have also dropped to 12,000 and her hgb to 8.6 so Dr Davis said she will probably also be getting a transfusion. She did say that the Agt is supposed to boost her platelets a little also.

Thank you again to everyone who is praying for my baby. And thanks for all of the support.

Mee-Ma

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