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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Wednesday, December 3, 2008

Day +167

Well we got the Ok today to go home for Christmas for just a few days but now we are having an issue with finding a non-commercial flight to get us there. We have different avenues we are trying so hopefully something will work out. I told Alicia we will jump on Santa's Sleigh if we have to!!!!!

With it being so close to Christmas it will be very hard for us to find a way. I am not going to give up hope though, Alicia wants to go home soooooo very bad!!!!!!!!!!!!!!!

Paula, Alicia's therapist, came today and she is working with Alicia going up and down stairs. She does the going down part pretty good but it is the going up part she has many problems with. She puts all of her weight backwards and no forwards and her legs just are not strong enough yet but with a little work she will over come that as well.

please keep us in your prayers in hopes we find a way home for Christmas and if any one has a Jet parked in their garage let me know!!!!!!!!!!!!!!!!!!!!!!

2 comments:

Anonymous said...

Hope you can find a way!!!!!!!!!!!
Know that you're in my thoughts and prayers!
Isaiah 53:4-5 Surely he hath borne our griefs, and carried our sorrows: yet we did esteem him stricken, smitten of God, and afflicted. But he was wounded for our transgressions, he was bruised for our iniquities: the chastisement of our peace was upon him; and with his stripes we are healed.
Prayer Bears

Charisse said...

Praying that you find a way! How exciting!
Love Charisse