Day +176

OK I am a little bumbed out again!!!!!!!!!!!!!!!!! Every thing is going OK, Alicia is still doing good I just got some news today that I did not want to hear. Dr Davies came in today while we were in Day Hospital to examine Alicia, she was very pleased with the way she is doing so I asked the "question". I was thinking I would wait until we got back from going home for Christmas before I started asking but I felt I had the moment today when she was pleased with Alicia's progress so I popped the question. I said " so when do you think we can plan on going home for good" and her reply was, " O i would thin the end of February was a good guess". NO!!!!!!!!!!!!!!!!!!!!!!!!!!!! that is not what I wanted to hear!!!!!!!!!!!!!!!!!!!!!!! I can live with it though but that is still another 2 months. Her reasoning is that she wants Alicia off of all of the meds she is on connecting to her GVH and off of them for a while to watch her to see if she will flare up again. She wants assured that Alicia's GVH she had will not come back and us be so far away. She said her plan is to have her off of them by the end of January and to watch her for a couple of weeks in February. That will mean we would of been here for NINE months!!!!!!!!!!!!!


I hope the short time we get to spend at home will gain some of my sanity back at least enough to make me last through February. I am soooooooo ready to get back to a "NORMAL" life. Alicia is doing so well so I have faith that the GVH will stay away. I most definitely do not want to jeopardize anything when it come to her. We have both been down such a long and hard road through this transplant and I do not want anything to go wrong. I am not willing to take any chances that will set us back and have to do any of what has already been done over. But on the other hand I did not imagine we would be here for NINE months!!!!!!!!!!!!!!!!!!!!!


We are so excited about going home!!!!!!!!!!!!!!!!!!!! I think I forgot to mention that Alicia only has 10 days left on her chart. We decided not to count the 23rd since we are leaving so early that morning!!!!!!!!!!!! Yes I got the call and we leave Cincinnati at 10 am and will be in Wichita some time around 4pm. They said we might have to stop and refuel once and that would be our only delay. Ne Ne is picking us up, I can not wait to see her again. We have never spent a Birthday apart in such a long while and I am so glad we will get this one together also. I have her all booked up the whole time we are there so I am sure she will be ready for us to leave when it comes time.


I am also so excited to see my Mom and Dad. I have not seen the both of them in seven months. I miss my Mom so much, she is such a great support to me. I have never been away from her this long and I can not wait to see her. I also want to see my nieces and nephews. I have one that was named after me that I have never seen. OK OK I now enough!!!!!!!!!!!!! I am just so excited!!!!!!!!!!!!!!!!!!!!!!!!!!