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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Wednesday, July 8, 2009

Hello everyone,
This is Krisstina updating for Michelle. I apologize for the late update. Michelle made it through the surgery OK and got up to her room around 6:30PM.
Her surgery was scheduled for 11:30 AM. She did not go back until 12:04PM. They called out at around 2:20PM and said all was going well, but still working. She got to recovery about 3:05PM.
Monday when we met with the doctor, he said he was not giving a time limit to the surgery. He said he was taking as long as he needed. He had a lot of work to do and scar tissue being one BIG obstacle he had to conquer. They were removing several sites for biopsy, along with scar tissue, lymph nodes, ovaries, tubes, uterus, and cervix. They were planning on doing it laproscopically with robots. She has 4 little 2 inch cuts that are glued together. He did not want to open her up again. She still has a very large open wound on her tummy. It is about 4 inches long and 2-3 inches wide at the top closest to skin and about 3 inches deep, but looks awesome. Michelle had been praying that the robotic would work and IT DID! We are so happy! Much less healing and down time.
Boy she was very unhappy tonight! She was feeling pressure and it scared her so she was getting anxiety. We finally got her comfortable. It took about 2 hours to get her comfortable enough to sit still. Not totally but when we left at 9:00PM they were trying to get finished.
We will find out more on results in about 72 hours.
Thank you so much for your prayers and checking in on Michelle and Alicia! Pray that they both get back up to par soon and will be able to return home to Kansas!

I will be updating every evening until Michelle is able to.
Thank you Krisstina

Alicia is doing well. She was already crying for MeeMaw tonight and Michelle spoke to her all drugged up and told her not to cry she got her new tummy and would be home tomorrow! YES, tomorrow is when she should get released.

2 comments:

Dianne said...

I am thrilled to hear that the doctor was able to do the surgery laproscopically. Michelle, please take the time you need to heal. God bless!!! Love, Dianne

Charisse said...

I meant to check this earlier. We have been praying. I am so glad that the surgery was a success and went well. We are praying for good results on all those areas being biopsied and checked. It is a lot to remove! Thanks for keeping us updated, Krisstina.
Love Charisse