CLICK HERE FOR THOUSANDS OF FREE BLOGGER TEMPLATES »

ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Monday, September 1, 2008

Pictures from Alicia's pass and Big Visit

Denise just e-mailed me some of the photo's she had taken, These are mostly from the 2nd day when we took her out after the zoo.......................
sorry I could not get this one to rotate, this is of Alicia getting ready to leave the hospital.....
This is one of Alicia, Kristian (far left, Kortnie middle and Cassie far right ) just out side of the BMT unit getting ready to get on elevator................................
And the one above is all four of them getting off of the elevator...........................
This is one of Alicia driving with Ne-Ne ( don't tell anyone cause she does not have her licence yet LOL..................................
and this is one of Alicia at the RMH......................................
Yes that is the remote in her hands, she seems to think she is the boss of that room also. Denise is sending me more and I will post them as soon as she does. Thank goodness I have Denise or I would not have any pictures of the whole weekend.

3 comments:

Lynn said...

Lookin good at RMH!
Praying here in Seattle!
Psalms 86:8-11 Among the gods there is none like unto thee, O Lord; neither are there any works like unto thy works. All nations whom thou hast made shall come and worship before thee, O Lord; and shall glorify thy name. For thou art great, and doest wondrous things: thou art God alone. Teach me thy way, O LORD; I will walk in thy truth: unite my heart to fear thy name.
Prayer Bears

Anonymous said...

Awwww, Freedom is wonderful! Sunshine! Praying for some answers on that tummy and the fevers! Better to find out before you leave Cincy! Hang in there and lots of hugs and kisses being sent your way!

Blessings and Bear Hugs,

Anonymous said...

I am lovin the pictures.. happy to see that she gets to see her cousins...keep the pictures comin