WE ARE ON OUR WAY TO THE OR TO HAVE HER LINE REMOVED. WISH US LUCK!!!!!!! ALICIA DID NOT SLEEP WELL LAST NIGHT ALTHOUGH SHE DID LET ME GET SOME REST. THE NURSE SAID SHE WAS UP TIL 4AM .
IT MIGHT OF BEEN DUE TO HER SLUMBER PARTY LAST NIGHT. THEO GOT TO SEND THE NIGHT. I TUCKED THEM BOTH IN AROUND 10PM BUT I HEARD HER TALKING TO HIM ALL NIGHT. I HAVE PICTURES AND WILL POST THEM WHEN WE RETURN FROM THE OR.
THE RASH HAS SPREAD EVERY WHERE. THEY ARE GIVING HER ANOTHER BOLUS OF STEROIDS JUST AS SOON AS WE GET BACK. SHE ALSO HAD ISSUES WITH HER BLOOD PREASSURE BUT IT IS UBDER CONTROL NOW.
THEY ARE HOPING HER REGULAR IV'S THEY PLACE TODAY IN THE OR WILL AT LEAST LAST UNTIL MONDAY WHEN THEY PUT THE PIC LINES IN HER ARMS.
TRANSPORT IS HERE. PLEASE PRAY THAT THIS WILL HELP GET RID OF HER BACTERIA IN THE BLOOD STREAM.
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
Saturday, August 16, 2008
DAY +58
Posted by Michelle at 7:12 AM
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