DAY +65 ( I THINK )

I AM SO SORRY ABOUT NOT BEING ABLE TO UPDATE. THE INTERNET IN THE HODSPITAL WAS DOWN FOR A WHILE AND IT HAS BEEN ALOT GOING ON WITH HE MOMMY AND DADDY HERE. ALICIA IS ON CLOUD NINE!!!!!!!!!!!! MY GOOD FRIEND REID IN 522 HAS ALSO HAD MY COMPUTER UPDATING IT AND INSTALLING A WEB CAM FOR US. (THANKS GIRL). AND THANKS TINA FOR LETTING EVERYONE KNOW WE WERE OK, ( YOUR THE BEST, ) BUT NOW WITH EVERYTHING SLOWING DOWN I PROMISE TO KEEP UP, I KNOW THAT ALL OF YOU WERE PROBABLY VERY WORRIED AND I ONCE AGAIN APPOLOGIZE.

ALICIA IS DOING BETTER. SHE IS STILL HAVING TUMMY ACHES BUT THEY SEEM TO COME ALOT MORE ONLY AT NIGHT. SHE STILL IS NOT EATING MUCH BUT THEY HAVE UPPED HER FEEDS AND SHE SEEMS TO BE TOLERATING THEM. THEY HAVE ALSO STARTED WEINING HER STEROIDS A LITTLE MORE FROM WHEN THE UPPED THEM VERY HIGH FOR THE GVH. HER SKINN GVH HAS WENT FROM A RASH TO ALOT OF SPOTS ALL OVER HER BODY BUT THE DOCS SAID THEY WILL TAKE A LONG TIME TO GO AWAY.

I THINK WITH HER MOMMY AND DADDY HERE HAS HELPED HER ALOT. THEY BROUGHT HER ALOT OF TOYS AND SHE HAS BEEN PLAYING ALOT OF GAMES WITH HER DADDY. SHE HAS TOUGHT THEM BOTH HOW TO GIVE THEO HIS MEDS, YES THEO IS STILL HERE. HERE IS SOME PICS OF HER AND DADDY AND ALL THREE OF THEM....


OOPS I MEAN ALL FOUR OF THEM.....


SHE IS STILL VERY WEAK AND IT IS SOOOOOO PAINFUL FOR HER TO WALK BUT WE ARE MAKING HER GET OUT AT LEAST ONCE A DAY AND WALK THE HALLS. SHE COMPLAINS ALOT ABOUT HER LEGS HURTING BUT THIS IS THE ONLY WAY SHE WILL GET STRONGER. WE HAVE TO BRIBE HER AND TELL HER SHE CAN WALK TO ABBY OR ALBERTS ROOM AND THAT SEEMS TO WORK BUT I CAN SEE THE PAIN IN HER EYES.


DENISE AND MY OLDEST SISTER KELLI WILL BE HERE THIS COMING WEEKEND AND I AM SOOOO LOOKING FORWARD TO THEM COMING. NE-NE IS HAVING SURGERY THE WEEK AFTER THEY GET BACK SO PLEASE KEEP HER IN YOUR PRAYERS. SHE PUT IT OFF SO SHE CAN SEE ALICIA ONCE MORE BEFORE, I LOVE HER SO MUCH SHE HAS BEEN A HUGE SUPPORT FOR ME!!!!!!!!!!!!!!!!!!!!!!!

ALICA FINALLY GOT TO HAVE HER PRINCESS PARADE. IT WAS SOOOOO CUTE. IT ENDED UP TUENING INTO A HUGE DEAL ON THE BMT FLOOR. HER FRIENDS ABBY AND ALBERT EVEN GOT TO JOIN IN. SHE LOOKED SO CUTE. AS SOON AS I POST THIS I WILL POST PICTURES OF THE PARADE, I JUST NEED TO DOWN LOAD THEM FIRST.

ONCE AGAIN I AM SORRY IF I HAD ANYONE WORRIED ABOUT US AND I THANK EVERYONE FOR ALL OF THE PRAYERS AND SUPPORT WE ARE GETTING.