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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Friday, May 15, 2009

Good news

*****UPDATE******
Not so good news today!

Alicia is back in ICU, she had her Potassium, Magnesium, and Calcium drop last night. She has been getting them since 3 AM and Michelle is exhausted!
She has had a feeding tube placed back in her nose and she also has had blood in stools, she is in a lot of pain. So we will see what happens next.

Stacy is also not doing well today! They could not switch him to the vent. He still has pneumonia and Mrsa. He is back on blood pressure meds.
Please continue prayers for both!
Krisstina

Not a whole lot happening here, well some, but more waiting than anything.

Michelle just found out that Stacy's brain is no longer bleeding. They are going to take him off life support and place him back on the vent. They are hoping he has no brain damage! They say he will also need a kidney. Please pray for him!

Alica is also doing better. Her numbers are starting to stabilize a bit and her restroom usage is slowing down. Pray her numbers stay up and they can go home next week.

Thank you so much for the prayers and keep them coming!!! They are working!!

Thanks
Krisstina

4 comments:

Teresa said...

Wow! Thank goodness things are improving some. How stressful for both families. Lots of love and prayers.

Love, teresa

Anonymous said...

Thankful for some good news!
Know that I'm here praying hard!
John 14:27 Peace I leave with you, my peace I give unto you: not as the world giveth, give I unto you. Let not your heart be troubled, neither let it be afraid.
Prayer BearsMy email address

Dianne said...

Sending good thoughts your way! Love, Dianne

Kristin Young said...

Hang in there guys! Your strength and prayers will pull you through.