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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Monday, May 18, 2009

UPDATE ON ALICIA AND STACY

I JUST POSTED AN UPDATE ON ALICIA BUT I WANTED TO LET EVERYONE KNOW HOW MY LITTLE BUDDY, STACY IS.

I SEEN MICHELLE ( HIS MOM) YESTERDAY A FEW TIMES AND SHE STILL HAD HOPE BUT WHAT SHE WAS TELLING ME GAVE ME NO HOPE AT ALL. SHE MELTED IN MY ARMS AND CRIED FOR WHAT WAS MINUTES BUT SEEMED SO LONGER. SHE SAID YESTERDAY THAT HE WAS MOVING HIS ARMS AND EYES AND SHE FELT HE WAS GOING TO GET BETTER.

THAT ALL CHANGED THIS MORNING. I JUST HUNG UP THE PHONE WITH HER AND SHE SAID DR DAVIES CAME IN THIS MORNING AND TOLD HER THERE WAS NOTHING MORE THEY COULD DO FOR HIM. SHE SAID DR DAVIES WAS CRYING WHICH TOLD ME IT WAS NOT GOOD. SHE SAID EVERYTHING IS SHUTTING DOWN AND IT WAS ONLY THE MACHINES KEEPING HIM ALIVE BESIDES HIS STRONG LITTLE HEART WHICH WAS STILL BEATING. DR DAVIES SAID THE MOVEMENT IS ONLY HIS NERVES. SHE TOLD MICHELLE THAT THEY COULD ONLY LEAVE HIM HOOKED TO THE MACHINES ONE MORE WEEK BEFORE GANGRENE WOULD TAKE OVER HIS BODY. I SAM AT A LOSS OF WORDS. I HURT SO BAD FOR MY FRIEND AND I WILL MISS MY LITTLE BUDDY SO MUCH. FA IS SOOOOOOO UGLY.

PLEASE LORD LOOK OVER MY FRIENDS AND TAKE CARE OF STACY WHEN HE GETS THERE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

4 comments:

Mary Ann Fiaschetti said...

Michelle,
First, praise the Lord you have arrived safe and sound and Alicia is back in Dr. Davies direct care. We'll keep up the prayers. You have a fighter on your hands and she is going to beat this infection!
Second, you were meant to be there for your friend Michelle. Who else would completely understand what they are going through with Stacy? Please give her an extra long hug from the FAmily. We all feel the sorrow of Stacy's situation.
Blessings, hugs and love,
the Fiaschetti FAmily

Kristin Young said...

Oh my gosh. My heart is broken. That poor family. Sweet Stacy. I am so very, very sorry. I just don't know what to say.

Charisse said...

Hello Michelle,
I agree with Mary Ann. Praise the Lord you are back under Dr Davies care. Jesus has a bigger plan and for sure, God is using you to be there for your friend. Pray for her, hug her. You understand her better than anyone else.
Alicia is one amazing fighter! Bless her heart. We have been praying for her and will continue to pray.
I have been praying for dear little Stacy as well and will continue to pray for him too.
Bless you all so much.
Love Charisse

Unknown said...

*!@??? you are so right FA is soooo ugly, awful, horrible, aaaaaaaaa! Tell Stacy's mom this whole big FAmily she has not me is holding her in their arms, embracing her in a world-sized hug.

my heart goes out to you and Alicia, too. you are grieving for your friend and coping with your own medical needs at the same time.

take care,
rachel