CLICK HERE FOR THOUSANDS OF FREE BLOGGER TEMPLATES »

ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Tuesday, July 15, 2008

DAY +26

WELL HOPEFULLY TODAY IS THE DAY!!!!!!!!!!!! AT LEAST THAT WAS THE LAST WORD YESTERDAY. IT CHANGES AROUND HERE EVERY HOUR SO I STILL HAVE MY FINGERS CROSSED, THEY HAVEN'T DONE ROUNDS YET TO SAY THE FINAL "GET OUT OF HERE" BUT SHE HAS NOT HAD ANY MORE TEMPS OVER NIGHT OR THIS MORNING SO HOPEFULLY WE WILL BE OUT OF HERE LATER TODAY.

HER COUNTS ARE UP AGAIN THIS MORNING. HER ANC WENT UP TO 2.11 ( AWESOME ), HER WBC WENT TO 2.6. HER PLATELETS ARE HOLDING AT 130,000, BUT HER HBG WENT DOWN TO 8.6 SO THAT IS THE ONLY THING I AM WORRIED ABOUT. I AM SURE THEY WILL GIVE HER SOME BEFORE WE LEAVE TODAY. ( LOOK POSITIVITY)

SHE HAD A REALLY GOOD NIGHT LAST NIGHT. I DIDN'T CHANCE TAKING HER OUT BUT WE PLAYED AND HAD ALOT OF FUN TOGETHER IN HER ROOM. I DON'T KNOW IF I EVER MENTIONED ALICIA'S LAST LITTLE "REMARK" BUT SHE DID IT AGAIN LAST NIGHT AND I WAS SOOOO EMBARRASED AGAIN. WE WERE PLAYING "I SEE". IT IS A GAME NE-NE MADE UP WHEN SHE WAS HERE. WE TAKE TURNS SAYING WHAT WE SEE. LIKE I WOULD SAY "I SEE A WHITE BLANKET' AND THEN IT WAS HER TURN TO SAY WHAT SHE SEE'S. WELL AFTER ABOUT FIFTEEN MINUTES OF PLAYING ALICIA'S PCA NURSE CAME IN TO TAKE VITALS, SHE IS A VERY NICE LADY BUT SHE HAS A HUGE REAR END. I KNEW WHAT WAS GOING TO HAPPEN THE SECOND SHE WALKED IN SO I TRIED TO CHANGE THE GAME REAL FAST BUT I WAS TOO LATE. ALICIA SAID "I SEE A BIG BUTT" I TURNED SO RED AND KEPT SAYING HOW SORRY I WAS BUT SHE JUST LAUGHED AND SAID KIDS SAY THE CUTEST THINGS. I SOOO WISH SHE WOULD OF SAID I SEE MEE-MA'S BIG BUTT BUT SHE DIDN'T, WE ALL KNEW SHE WAS TALKING ABOUT THE NICE NURSE. NEEDLESS TO SAY WE WILL NOT BE PLAYING THAT GAME TO OFTEN ANY MORE. (THANKS NE-NE)

MY MOM SENT ALICIA THE CUTEST GIFT YESTERDAY. ALICIA JUST TOTALLY LOVED IT. SHE WOULD NOT TAKE IT OFF ALL NIGHT. I LOVE IT ALSO. IT WAS A DORA BLANKET JUST HER SIZE AND IT ROLLS UP, SO IT IS HANDY TO TAKE ANY WHERE. THANKS MOM, YOU ARE THE GREATEST, AS YOU CAN TELL BY THE PICTURES ALICIA LOVE THE BLANKET!!!!!!!!!!



I WANT TO THANK EVERYONE AGAIN FOR ALL OF THE PRAYERS BEING SAID FOR ALICIA. I BELIEVE THE LORD HEARS THEM ALL!!!!!!!!!!!

SEE YOU SOON MOMMY, NE-NE AND CASSIE, AND HOPEFULLY KELLI AND CLAN ALSO!!!!!!!!!!!!! LOVE YOU ALL!!!!!!!!!!!!

2 comments:

Anonymous said...

I am so happy the fevers are gone. Praise God for all his wonderful blessings! I am praying for you both. Sarah said Hello!

Lots of Love and (((hugs)))

www.caringbridge.org/visit/sarahp

Anonymous said...

I've been reading the blong every day and have prayed for you and Alicia during all of the ups and downs.
Please know that I am thinking of you and praying so hard that Alicia will be feeling great soon!
She looks beautiful and her smile is just so fantastic!
Sending you tons of hugs,
Mary Ann